Advocacy Partners

Brain tumour patients can be confident their voices are being heard through a number of additional groups working together to speak in a unified way.

Brain Tumour Foundation of Canada works together with many partners in the cancer and neurological health care communities to advance the issues important to you. This includes working with the following groups:

 

Around the world, the brain tumour community is a vast connection of organizations, health care institutions, patients, families and initiatives. These efforts are networked through the International Brain Tumour Alliance (IBTA). The IBTA coordinates the International Brain Tumour Awareness Week. In 2016, this awareness effort wil take place from October 22 to October 29, 2016.

 

 

Volunteers are an important part of all of this work, read about some of the volunteers who are dedicated to brain tumour advocacy efforts:

  
Trevor's Story: “More Awareness Would Be a Great Leap Forward” - When he headed out for a touch football game in mid-September 2010, being diagnosed with a serious illness was the furthest thing from 24-year-old Trevor Harrison’s mind. After experiencing a seizure on the field, he was rushed to the emergency room of the general campus of Ottawa Hospital. Before long he was being told he needed surgery to remove a mass on his brain.

This unexpected diagnosis led to an immediate leave from his demanding Ottawa job as a political staffer on Parliament Hill. Surgery was scheduled for the end of September. It was during that time that Trevor learned that October is Brain Tumour Awareness Month in Canada. Read more...

Femma's Story: Caregiver and Survivor Takes Advocacy to the National Level - The cliché is; “when life gives you lemons, you make lemonade,” and activist Femma Norton brings this saying to life by taking the many lemons she has been given and squeezing the most out of them. Her sheer optimism and determination have led to important efforts for the brain tumour community in Canada. Read more...
Marianne's Story: Making Change for Patients and Families - “It’s all about the patients,” explains neurosurgery social worker and Brain Tumour Foundation of Canada volunteer Marianne Lee. In 2006 Marianne was approached by neurosurgeon and chair of the board Dr. Joseph Megyesi about joining the organization’s Board of Directors.

“I decided it was a great way to make a difference at a larger level, to help brain tumour patients across the country.” Since that time Marianne has given of her time and expertise in many ways, helping to lead change and growth for the brain tumour community. Read more...

 

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Featured Story

Pablo's Story: The real blessing in all of this

In 2010, Pablo found himself in the ER eight times within six weeks. Intense headaches, drastic weight loss, jaundice, dizziness, and lapses in time were repeatedly dismissed by doctors, but Pablo knew that something was very wrong. Choosing to advocate for his health when others might have given up, Pablo sought out the opinion of his family practitioner and his persistence may have, in fact, saved his life. An MRI revealed a grade IV atypical meningioma on Pablo’s brain.

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Spotlight

Catarina's Story: Crush Cushing’s

Brain Tumour Walk events bring people together. People like Catarina and Danielle, both survivors of pituitary tumours that caused...

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Where our footsteps lead...

We remain inspired by the bravery and perseverance of the brain tumour community, including kids like 6-year-old Joshua, who completed...

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Upcoming Events

  • 26/Sep/2017: Groupe de soutien virtuel: Un groupe de soutien virtuel pour personnes touchées par une tumeur... Learn more >
  • 27/Sep/2017: Toronto Support Group: Meets at Wellspring Westerkirk House at Sunnybrook, Toronto, ON... Learn more >
  • 27/Sep/2017: Ottawa Support Group: Meets at the Maplesoft Centre at 1500 Alta Vista Drive, Ottawa, ON.... Learn more >
  • 28/Sep/2017: Virtual Support Group East: Virtual Support Group for Eastern Canada... Learn more >
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