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For Parents of Children with Brain Tumours

By clicking on 'View Summary' under each resource, you will find a summary, the ISBN and publisher’s name which will help you if you wish to purchase or reserve a copy at your local library.

The Official Parent's Sourcebook on Childhood Brain Tumours

A Revised and Updated Directory for the Internet Age
Author:  James N. Parker, M.D. And Philip M. Parker, PH.D.
ISBN #: 0-597-83110-6
Publisher: N/A

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Summary:
“Originally created for physicians and other health care providers, this Sourcebook has been revised and updated for non-professionals wishing to pursue self-directed research. This book directs you to advanced public, academic, government and peer-reviewed research.”

Cancer in the Family

Helping Children Cope With a Parent’s Illness
Author:  Sue P. Heiney (PhD, RN); Joan F. Hermann (MSW, LSW); Katherine V. Bruss (PsyD); Joy L. Fincannon (RN, MS)
ISBN #: 0-944235-34-4
Publisher:  American Cancer Society

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Summary:
“Outlines valuable steps necessary to help children understand what happens when a parent has been diagnosed with cancer.”

100 Questions & Answers About Your Child’s Cancer

Author:  William L. Carroll (MD) & Jessica Resiman (CSW)
ISBN #: 0-7637-3140-4
Publisher: Jones and Barlett Publishers

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Summary:
“Gives you authoritative, practical answers to your questions about childhood cancer, treatment options, post-treatment quality of life, coping strategies for both patient and caregiver, sources of support, and much more.”

Childhood Brain & Spinal Cord Tumours

A Guide for Families, Friends, & Caregivers
Author:  Shiminski-Maher
ISBN #: 059650009-2
Publisher:  Cullen, & Sanslon, O’Reilly

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Summary:
“Childhood Brain & Spinal Cord Tumours, the most complete parent guide available, includes detailed and precise medical information about both benign and malignant brain and spinal cord tumours that strike children and adolescents. In addition it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement.”

Brain Tumours Finding the Ark

Meeting the Challenges of Treatment Choices, Side Effects, Children’s Unique Needs, Healthcare Costs & Long Term Adjust
Author: Paul M. Zeltzer (MD)
ISBN #: 0-9760171-1-3
Publisher:  Shilysca Press

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Summary:
“The patient-oriented medical guidebook that helps you understand why what your physician tells you about diagnosis or treatment may not be in your best interest.”

When a Parent is Sick

Helping Parents Explain Serious Illness to Children
Author:  Joan Hamilton
ISBN #: 1-895900-40-9
Publisher:  Pottersfield Press

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Summary:
“This book provides parents and other care givers with suggestions on how to approach children with the information that their parent is seriously ill. There are lots of examples of how and what to say to children and teens”

Understanding the Journey: A Parent’s Guide to DIPG

Editor: Ruth I. Hoffman

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Summary:
At 368 pages, the book provides practical and clinical information for families, doctors and caregivers who are faced with the complexities of the diffuse intrinsic pontine glioma, one of the deadliest pediatric brain tumors that currently has no known cause or cure. Chapters include information about diagnosis, imaging, pontine function and anatomy, steroid treatment, radiation therapy, radiosensitizers, surgery, and chemotherapy and biologics. Each chapter concludes with parent perspectives on each topic – poignant, first-person accounts of their own experiences caring for their child diagnosed with DIPG  

A Sippy Cup of Chemo: A Family’s Journey Through Childhood Cancer

Author: Sue McKechnie
ISBN #: 978-0-9919439-0-6

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Summary:
In a small Ontario town, an average family is faced with an ailing child and no answers. After several missed diagnoses, the family is sent to SickKids Hospital in Toronto. There, the devastating verdict is delivered: there is a cancerous tumour lodged in their 18-month-old son's brain. This is much more than a story about a little boy battling cancer. It's a story of a family confronted by the biggest challenge one can ever face. As they juggle the needs of their healthy child, their jobs, their finances, and even finding a place to sleep, they must learn to rely on a network of extended family, friends, and a giving community. It's a story of a loving couple whose relationship is tested beyond the boundaries of normal who come to support each other in their contradictory impulses to fight their son's cancer at all costs or to accept the inevitable outcome that awaits him. It's a story about parents who are forced to take on the roles of nurse, pharmacist, therapist, researcher and advocate in a world filled with experts who don't know their young patient on a profound or personal level. It's a story about a non-religious couple who come to believe with absolute certainty that there is life after death and that their wonderful son may have passed from this life, but still exists and gives them courage from another. Finally, it's a story about the legacy of courage and hope that Shawn leaves within this circle of people; a legacy of helping other families struggling through this journey who need to realize that they are not alone

Featured Story

Pablo's Story: The real blessing in all of this

In 2010, Pablo found himself in the ER eight times within six weeks. Intense headaches, drastic weight loss, jaundice, dizziness, and lapses in time were repeatedly dismissed by doctors, but Pablo knew that something was very wrong. Choosing to advocate for his health when others might have given up, Pablo sought out the opinion of his family practitioner and his persistence may have, in fact, saved his life. An MRI revealed a grade IV atypical meningioma on Pablo’s brain.

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Spotlight

Catarina's Story: Crush Cushing’s

Brain Tumour Walk events bring people together. People like Catarina and Danielle, both survivors of pituitary tumours that caused...

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Where our footsteps lead...

We remain inspired by the bravery and perseverance of the brain tumour community, including kids like 6-year-old Joshua, who completed...

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Upcoming Events

  • 26/Sep/2017: Groupe de soutien virtuel: Un groupe de soutien virtuel pour personnes touchées par une tumeur... Learn more >
  • 27/Sep/2017: Toronto Support Group: Meets at Wellspring Westerkirk House at Sunnybrook, Toronto, ON... Learn more >
  • 27/Sep/2017: Ottawa Support Group: Meets at the Maplesoft Centre at 1500 Alta Vista Drive, Ottawa, ON.... Learn more >
  • 28/Sep/2017: Virtual Support Group East: Virtual Support Group for Eastern Canada... Learn more >
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