Make every brain tumour count

With more than 120 brain tumour types, they are complex and can be difficult to treat.

Stephanie Ford knows this all too well. The 38-year-old mother of twins was diagnosed with an extremely rare and inoperable brain tumour - a rosette-forming glioneuronal tumour, a type of tumour that little is known about and cannot be removed due to its location in her brain.

This reality does not stop Stephanie from her tireless efforts to reduce the stigma of having a brain tumour. "With every year passing, I have more hope for myself and others who face this kind of diagnosis. We don't want to have to go through treatments that can change us or be faced with living with a brain tumour that there's no research on. That's why every brain tumour needs to be counted; to accelerate our advocacy efforts, to support research, and ensure better treatments and services for all brain tumour patients."

Thanks to the hard work of brain tumour advocates and loyal support from hundreds of donors, on May 14, 2019, the registry website BrainTumourRegistry.ca was launched, sharing the first comprehensive data report about the incidence of brain tumours, including non-malignant brain tumours, in four provinces of Canada (Alberta, British Columbia, Manitoba, Ontario), representing 70% of the Canadian population.

This is only the beginning! 70% of the population is not enough! 

"I have had to come to terms with the notion that I am vulnerable as a human being. I have become the statistic you hear about. With your support, the Brain Tumour Registry of Canada is a step closer to helping find a cure."

Please donate and help us make sure that every Canadian with a brain tumour counts!

 

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Featured Story

Make every brain tumour count

Stephanie, a 38-year-old mother of twins has been diagnosed with an extremely rare and inoperable brain tumour - a rosette-forming glioneuronal tumour, a type of tumour that little is known about and cannot be removed due to its location in her brain. This reality does not stop Stephanie from her tireless efforts to reduce the stigma of having a brain tumour. Learn why Stephanie is urging all Canadians to make every brain tumour count.

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