Erin's Story

Erin's Story
Update: September 2015. Today we learned the heartbreaking news that Erin Voss, a long-time volunteer, fundraiser and brain tumour community supporter has passed away. Our hearts go out to Erin’s family and friends, and all who had the great fortune to meet and connect with her.

When Erin Voss celebrates her 24th birthday in May, she will be a very different person than she was on the same date last year. In the summer of 2010, the health care aide began experiencing a variety of troubling but unexplained symptoms which led to the diagnosis of a brain tumour. Understandably, Erin’s school and professional life have been put on hold as she continues treatment but it has brought her closer to both her family and friends. This spring, Erin, along with her family and friends, are supporting Brain Tumour Foundation of Canada’s Spring Sprint  (now Brain Tumour Walk).

When the headaches, exhaustion, nausea and dizziness began, Erin was first told she was dehydrated. “Then I went back to the doctor and he sent me to the hospital. They gave me antibiotics for a sinus infection.” A pinched nerve from work was also suspected. Then her doctor arranged a CT scan where they discovered a fluid build up on her brain. Three days later they did an MRI and found three masses. “One not so big, one medium and an aggressive one at the front of my head,” explains Erin. “It was like being smacked in the face.”

On September 2, 2010 the former Waterloo Wildfire player underwent surgery for a right frontal craniotomy with tumour removal. It took five hours and it induced a 20-minute seizure afterward, keeping her hospitalized for a week. Then on September 21, 2010, she was told it was cancer. “It was a Glioblastoma, Multiforme Stage Four and they were able to remove 95 percent of it but they determined it was malignant,” Erin adds. “With the other two, we are hoping the treatments will shrink them.” Erin has completed her radiation while chemotherapy continues and will have another follow-up MRI in June.

Even in the midst of this ordeal, Erin continues to think of others. “I was going to lose my long hair so I cut it short and donated it before I lost it,” says Erin. “Now my sister, me and my family are volunteering for and participating in the Kitchener-Waterloo Spring Sprint. Even though we don’t have a cure right now we do have hope. “

An appreciation for life is the advice Erin offers others: “Slow down and enjoy the little things in life. You can lose focus and this has grounded me to get my life together and live it to the fullest. Enjoy what you do and the people that you are with.”

Erin is also quick to encourage others to reach out to Brain Tumour Foundation of Canada because of its many support programs. “I’ve found their website is one of the best out there. We got the children’s book and I went through it with my younger brother and it was the right level of learning. I would recommend it to anybody. My family is also part of the Facebook page,” explains Erin.

“It’s really helped me in knowing that there are others out there and support everywhere. It’s such a wonderful organization and I have definitely learned a lot, especially with the handbook. I’ve even given it out to circulate amongst my friends so they could know too. They’re always there for you and now we can be there for Brain Tumour Foundation of Canada.”

Her hope for the future is, “Ultimately for a cure and advancements that can expand the survival rate. I wish it wasn’t as prevalent and others could know more,” implores Erin. “There are so many mothers, fathers, sisters, bothers and children with brain tumours but there needs to be more help to find a cure. We need to get people involved.”

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Story posted: May 2011


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