Federal Election 2019

Making Every Brain Tumour Count!

Key Questions for Federal Election Candidates

Brain Tumour Foundation of Canada is committed to supporting patients and families affected by a brain tumour through education, information and support.  We also work to change practices and policies that are not inclusive of the brain tumour community.  

This year, our advocacy efforts have focused on (1) equal access to treatment; (2) sustainable funding for the Brain Tumour Registry of Canada; and (3) ensuring research into brain tumours receives recognition and increased funding. These priority issues were informed by the most recent advocacy survey completed by the brain tumour community.

During this federal election campaign, we invite you to engage with federal candidates about these issues that are of critical importance to our community.  You may find opportunities to speak with candidates in door-to-door candidacy campaigns, community gatherings, regional debates, and town halls.  You may also choose to write or email the candidates in your area.

We have developed the following 3 questions that can be posed to federal candidates.  We encourage you to use these questions in your conversations. We will also be posing these questions to the federal party leaders.

1. Universal Access to Temozolomide 

There is one internationally accepted treatment for malignant brain tumours.  It is a chemotherapy has been approved for use in Canada for over a decade.  It is a bit different from other chemotherapies because it only comes in pill form and is taken at home.  In Canada, this means this chemo is not equally accessible to all.  This is because each province takes a different approach to funding “take at home” drugs.  In some provinces, patients have quick access to the drug and pay nothing for it.  In other provinces, they wait weeks and still face unaffordable costs.  This means many patients across Canada continue to be at risk.  Brain tumours can’t wait.

Q: What is your party’s plan to eliminate drug funding inequity in Canada and make access to cancer treatments universally accessible?

 

2. Support for the Brain Tumour Registry of Canada

In 2019, Brain Tumour Foundation of Canada established the first national brain tumour registry.  This was a critical step to understanding more about the incidence of all brain tumours in Canada and the experience of those affected by them.  For the first time, researchers and health care administrators in Canada will have accurate information to guide their decisions on treatments and programs for this population. It is imperative that this critical data source continue.  

Q: What is your party’s plan for ensuring this project and other disease registries continue to exist and inform our health care system in Canada?

 

3. Access to Research Dollars

Brain tumours are the leading cause of solid cancer death in children under the age of 20, now surpassing acute lymphoblastic leukemia. It is the investment in leukemia research that has made the difference. Research is essential to improving treatments and outcomes for individuals affected by a brain tumour. 

Q: Where does your party stand on improving accessibility to research funds for clinicians and researchers working on brain tumours?
 

How can you ask these questions?

At the door: Candidates will be knocking on doors to connect directly with voters, this is a great chance to talk about what matters to you.

At events: Public events are a common place to find candidates, you can talk to them there about issues affecting the brain tumour community.

By email or phone: Find the websites of the political parties and of your local candidates and send an email or make a phone call detailing your concern for brain tumour patients and survivors and ask for the candidate's support of issues.

Social media: If you are using Twitter and/or Facebook, connect with your local candidates and the party leaders on those social networks and engage in a a conversation about these issues.

If you use social media, consider using these hashtags to broaden your message: 
 
  • #elxn43
  • #BrainTumoursCount

Please also tag us @BrainTumourFdn

Remember, this is an opportunity to engage and educate candidates across Canada. This may be the first time they are learning about brain tumours so it is important to be respectful and open to discussion. Every conversation that can be had with potential government decision makers takes us all another step closer to making change for every Canadian affected by a brain tumour.
 

We want to hear from you:

If you have had the opportunity to ask one or more of these questions, please let us know more about the conversation.

 

Thank you!

 

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