Advocacy Partners

Brain tumour patients can be confident their voices are being heard through a number of additional groups working together to speak in a unified way.

Brain Tumour Foundation of Canada works together with many partners in the cancer and neurological health care communities to advance the issues important to you. This includes working with the following groups:

 

Around the world, the brain tumour community is a vast connection of organizations, health care institutions, patients, families and initiatives. These efforts are networked through the International Brain Tumour Alliance (IBTA). The IBTA coordinates the International Brain Tumour Awareness Week. In 2016, this awareness effort wil take place from October 22 to October 29, 2016.

 

 

Volunteers are an important part of all of this work, read about some of the volunteers who are dedicated to brain tumour advocacy efforts:

  
Trevor's Story: “More Awareness Would Be a Great Leap Forward” - When he headed out for a touch football game in mid-September 2010, being diagnosed with a serious illness was the furthest thing from 24-year-old Trevor Harrison’s mind. After experiencing a seizure on the field, he was rushed to the emergency room of the general campus of Ottawa Hospital. Before long he was being told he needed surgery to remove a mass on his brain.

This unexpected diagnosis led to an immediate leave from his demanding Ottawa job as a political staffer on Parliament Hill. Surgery was scheduled for the end of September. It was during that time that Trevor learned that October is Brain Tumour Awareness Month in Canada. Read more...

Femma's Story: Caregiver and Survivor Takes Advocacy to the National Level - The cliché is; “when life gives you lemons, you make lemonade,” and activist Femma Norton brings this saying to life by taking the many lemons she has been given and squeezing the most out of them. Her sheer optimism and determination have led to important efforts for the brain tumour community in Canada. Read more...
Marianne's Story: Making Change for Patients and Families - “It’s all about the patients,” explains neurosurgery social worker and Brain Tumour Foundation of Canada volunteer Marianne Lee. In 2006 Marianne was approached by neurosurgeon and chair of the board Dr. Joseph Megyesi about joining the organization’s Board of Directors.

“I decided it was a great way to make a difference at a larger level, to help brain tumour patients across the country.” Since that time Marianne has given of her time and expertise in many ways, helping to lead change and growth for the brain tumour community. Read more...

 

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Featured Story

Make every brain tumour count

Stephanie, a 38-year-old mother of twins has been diagnosed with an extremely rare and inoperable brain tumour - a rosette-forming glioneuronal tumour, a type of tumour that little is known about and cannot be removed due to its location in her brain. This reality does not stop Stephanie from her tireless efforts to reduce the stigma of having a brain tumour. Learn why Stephanie is urging all Canadians to make every brain tumour count.

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Upcoming Events

  • 26/Aug/2019: Greater Sudbury Support Group: Meets at The Parkside Centre, 140 Durham Street, Sudbury, Ontario... Learn more >
  • 27/Aug/2019: Webinar: Pituitary Tumours – Treatment & Management : Free webinar. Please register to join.... Learn more >
  • 28/Aug/2019: Toronto Support Group: Meets at Wellspring Westerkirk House at Sunnybrook, Toronto, ON... Learn more >
  • 01/Sep/2019: C Cup Classic 2019: Rocky Mountain Turf Club, Lethbridge, AB and Century Downs Racetrack &... Learn more >
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