Research Participation Opportunities

Researchers across Canada are investigating a variety of topics important to the brain tumour community. Often this research requires the participation of individuals to help determine if hypothesis' are valid. In this case, researchers recruit members of the public to take part in their projects. On this page you will find links to current research in which you may be interested in participating.

Please note, this is not a list of clinical trials.  
 

Teleneuropsychology: Assessment and Intervention in High-Grade Primary Brain Tumours 

Recruitment PosterYou may be eligible to participate if you: 

  • Have been diagnosed with a high-grade primary brain tumour;
  • Are 18 years of age or older;
  • Are able to speak, read, and write in English.

If you meet the above criteria  and would like more information about participating in this study, please contact: 

Mark Collins, M.A.

Supportive Care Research Oncology Unit, Unité de recherche sur les soins de soutien en oncologie Northeast Cancer Centre/Centre de cancérologie du Nord-Est, Health Sciences North/ Horizon Santé-Nord , 41, chemin du lac Ramsey Lake Road, Sudbury, ON P3E 5J1, Telephone/Téléphone : (705) 522-6237 poste/ext : 2431  

Download this poster as a PDF

 

International Low Grade Glioma Registry

What is a low grade glioma?
A non-malignant / low grade glioma (LGG) is a slow growing tumor of the brain.

What is the goal of the study?
The purpose of this study is to discover why some people develop LGG while other people do not. We also hope to learn more about the effect of this diagnosis and the associated treatments on daily life including the ability to work, drive, sleep, exercise, or take care of oneself and/or family.

Who is organizing the study?
The study is organized by Dr. Elizabeth B. Claus (Yale University School of Public Health and Brigham and Women’s Hospital Department of Neurosurgery)

Who can enter the study?
Any person over the age of 20 years with an initial diagnosis of LGG. Postmortem tissue samples and pathology reports may also be eligible for inclusion in the study. Please email for more information.

What are study participants asked to do?
The study asks participants to 1) provide a pathology report, 2) complete an online questionnaire and 3) provide a saliva sample that will permit us to look at changes in DNA. If you allow, we will also review your tissue specimens and MRI scans of your LGG. Some participants will be asked to contribute activity data and perform neurocognitive tasks via their smartphone. 

May I contact the study to get more information?
Please use one of the methods below for more information about the study.  

email the study at glioma@yale.edu

Learn more about Dr. Elizabeth B. Claus

Read this article from The International Brain Tumour Alliance.

Note: We are determined that Canada should have it's own Brain Tumour Registry for every type of brain tumour. Find out more about the progress that has been completed so far and how much more still needs to be done until every brain tumour in Canada will be counted with no enrolment necessary.

 

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