Organization Backgrounder

Every day, 27 Canadians hear the words,“You have a brain tumour.”

It is the mission of Brain Tumour Foundation of Canada to reach every individual impacted by this disease, across the country, with information, support, education and research. Thanks to donors’ generosity, patients, survivors, caregivers and loved ones are empowered with the tools to improve their quality of life while on the journey with a brain tumour

Regional Programming, Services and Fundraising Overviews

Below are one-page documents that offer a convenient, one-stop overview of  resources, programs and events for anyone affected by a brain tumour, across Canada. You can also share these documents with others.

British Columbia

The Prairies


Quebec (English)

Quebec (French)

The Atlantic Region


General Organization Background

Every day, brain tumours steal lives. It’s a deadly disease and takes away who someone is as a person – their ability to work, to be part of a family and to just be who they were before the diagnosis. Life is forever changed with five little words: “You have a brain tumour”.

That’s why Brain Tumour Foundation of Canada exists – to help those on the journey and to put an end to this devastating disease.

Through a national network of programs, patients and their loved ones can connect with others and be empowered to act as their own best health care advocates. Research moves faster so we can find better brain tumour treatments and, one day, a cure.

Patient and research investments include:

  • Brain Tumour Handbooks focused on adult patients, pediatric patients and those diagnosed with a non-malignant or low-grade brain tumour
  • National network of support groups for adults affected by a brain tumour and their caregivers
  • BrainWAVE Family Support Program for families with children and teens affected by a brain tumour in Southern Ontario, Alberta and Lower Mainland British Columbia
  • Brain Tumour National Conference event; presentations are focused on the latest developments in brain tumour research and treatments as well as quality-of-life issues. Presentations are also live-streamed across Canada.
  • Canada’s only awards program for pediatric brain tumour survivors enrolled in post-secondary education
  • One-to-one support and information requests through a national, toll free 1-800 line (1-800-265-5106)
  • Specialist information, education and support available at
  • Funding research projects into the causes and treatments of brain tumours through programs like annual grants, fellowships and studentships; to date more than $6 million has been directed to brain tumour research.

Brain Tumour Foundation of Canada’s History

Brain Tumour Foundation of Canada is the only national, not-for-profit organization dedicated to reaching every Canadian affected by a brain tumour through support, education, information and research. Every year, thousands of people affected by brain tumours find emotional support and comfort through Brain Tumour Foundation of Canada, while gaining a better understanding and knowledge of their disease. There are an estimated 55,000 Canadians currently living with a brain tumour.

The organization was established in London in 1982 by Steve Northey, who lost his eight-year-old daughter Kelly to a brain tumour, Dr. Rolando Del Maestro, a neurosurgeon, and Pamela Del Maestro, a neuroscience nurse, to help find the cause and cure while improving the quality of life of those affected. Since the early days of the organization, it has been our vision to find the cause of and cure for brain tumours while improving the quality of life for those affected. Brain Tumour Foundation of Canada is funded solely through generous contributions from individuals, corporations, organizations, employee groups and special events.



Download the general background information as a pdf.

For more information, contact:

Carla Garrett
Marketing and Communications Associate
1-800-265-5106 or 519-642-7755, ext. 244

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Upcoming Events

  • 19/Mar/2018: Virtual Support Group for Caregivers: Virtual Support Group for Caregivers... Learn more >
  • 19/Mar/2018: Guelph Support Group: Meets at Hospice Wellington, Community Program Room, 795 Scottsdale Avenue,... Learn more >
  • 19/Mar/2018: Mississauga Support Group: Meets at Westminster United Church, 4094 Tomken Rd., Mississauga, ON... Learn more >
  • 19/Mar/2018: Edmonton Support Group: Meets at Wellspring Edmonton, 11306 65 Ave NW, Edmonton, AB ... Learn more >
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Thank you to the donors whose contributions make this website and all programs, services and research possible.

Copyright © 2018 Brain Tumour Foundation of Canada. Charitable Registration #BN118816339RR0001