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For Parents of Children with Brain Tumours

By clicking on 'View Summary' under each resource, you will find a summary, the ISBN and publisher’s name which will help you if you wish to purchase or reserve a copy at your local library.

The Official Parent's Sourcebook on Childhood Brain Tumours

A Revised and Updated Directory for the Internet Age
Author:  James N. Parker, M.D. And Philip M. Parker, PH.D.
ISBN #: 0-597-83110-6
Publisher: N/A

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Summary:
“Originally created for physicians and other health care providers, this Sourcebook has been revised and updated for non-professionals wishing to pursue self-directed research. This book directs you to advanced public, academic, government and peer-reviewed research.”

Cancer in the Family

Helping Children Cope With a Parent’s Illness
Author:  Sue P. Heiney (PhD, RN); Joan F. Hermann (MSW, LSW); Katherine V. Bruss (PsyD); Joy L. Fincannon (RN, MS)
ISBN #: 0-944235-34-4
Publisher:  American Cancer Society

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Summary:
“Outlines valuable steps necessary to help children understand what happens when a parent has been diagnosed with cancer.”

100 Questions & Answers About Your Child’s Cancer

Author:  William L. Carroll (MD) & Jessica Resiman (CSW)
ISBN #: 0-7637-3140-4
Publisher: Jones and Barlett Publishers

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Summary:
“Gives you authoritative, practical answers to your questions about childhood cancer, treatment options, post-treatment quality of life, coping strategies for both patient and caregiver, sources of support, and much more.”

Childhood Brain & Spinal Cord Tumours

A Guide for Families, Friends, & Caregivers
Author:  Shiminski-Maher
ISBN #: 059650009-2
Publisher:  Cullen, & Sanslon, O’Reilly

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Summary:
“Childhood Brain & Spinal Cord Tumours, the most complete parent guide available, includes detailed and precise medical information about both benign and malignant brain and spinal cord tumours that strike children and adolescents. In addition it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement.”

Brain Tumours Finding the Ark

Meeting the Challenges of Treatment Choices, Side Effects, Children’s Unique Needs, Healthcare Costs & Long Term Adjust
Author: Paul M. Zeltzer (MD)
ISBN #: 0-9760171-1-3
Publisher:  Shilysca Press

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Summary:
“The patient-oriented medical guidebook that helps you understand why what your physician tells you about diagnosis or treatment may not be in your best interest.”

When a Parent is Sick

Helping Parents Explain Serious Illness to Children
Author:  Joan Hamilton
ISBN #: 1-895900-40-9
Publisher:  Pottersfield Press

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Summary:
“This book provides parents and other care givers with suggestions on how to approach children with the information that their parent is seriously ill. There are lots of examples of how and what to say to children and teens”

Understanding the Journey: A Parent’s Guide to DIPG

Editor: Ruth I. Hoffman

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Summary:
At 368 pages, the book provides practical and clinical information for families, doctors and caregivers who are faced with the complexities of the diffuse intrinsic pontine glioma, one of the deadliest pediatric brain tumors that currently has no known cause or cure. Chapters include information about diagnosis, imaging, pontine function and anatomy, steroid treatment, radiation therapy, radiosensitizers, surgery, and chemotherapy and biologics. Each chapter concludes with parent perspectives on each topic – poignant, first-person accounts of their own experiences caring for their child diagnosed with DIPG  

A Sippy Cup of Chemo: A Family’s Journey Through Childhood Cancer

Author: Sue McKechnie
ISBN #: 978-0-9919439-0-6

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Summary:
In a small Ontario town, an average family is faced with an ailing child and no answers. After several missed diagnoses, the family is sent to SickKids Hospital in Toronto. There, the devastating verdict is delivered: there is a cancerous tumour lodged in their 18-month-old son's brain. This is much more than a story about a little boy battling cancer. It's a story of a family confronted by the biggest challenge one can ever face. As they juggle the needs of their healthy child, their jobs, their finances, and even finding a place to sleep, they must learn to rely on a network of extended family, friends, and a giving community. It's a story of a loving couple whose relationship is tested beyond the boundaries of normal who come to support each other in their contradictory impulses to fight their son's cancer at all costs or to accept the inevitable outcome that awaits him. It's a story about parents who are forced to take on the roles of nurse, pharmacist, therapist, researcher and advocate in a world filled with experts who don't know their young patient on a profound or personal level. It's a story about a non-religious couple who come to believe with absolute certainty that there is life after death and that their wonderful son may have passed from this life, but still exists and gives them courage from another. Finally, it's a story about the legacy of courage and hope that Shawn leaves within this circle of people; a legacy of helping other families struggling through this journey who need to realize that they are not alone

Diffuse Intrinsic Pontine Glioma: Questions, answers & thoughts

Author: Written on behalf of The Katie McKerracher Trust

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Summary:
This booklet was written on behalf of the Katie McKerracher Trust which was set up in memory of our daughter Katie who was diagnosed with a Diffuse Intrinsic Pontine Glioma (DIPG), a tumour in her brain stem, in February 2008.   This booklet explains the various stages you are likely to go through, from the shock of diagnosis and embarking on a treatment plan to the importance of keeping a diary, maintaining regular and effective communication, asking questions, and how to cope with the effects of the disease as a family on a day-to-day basis.

Featured Story

Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour growth is stable” and for a moment you think someone is playing the world’s worst prank on you.

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Spotlight

Stephen's Story: "I have faith that we will meet again"

Stephen and I chatted on what should have been his 32nd Wedding Anniversary. Stephen and Susan were married for 30 years and were best...

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Tommy's Story: Fellowship recipient

Dr. Tommy Alain, the very first research Fellow funded by Brain Tumour Foundation of Canada through the William Donald Nash Brain...

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