Primitive Neuroectodermal Tumours (PNET)


Tumour Group: Other Brain Tumours and Related Conditions
WHO Grade: Grade IV
Typical Age Range:  

Description of Tumour
Treatment / Standard of Care

Description of Tumour

The pathology of primitive neuroectodermal tumours (PNET) is identical to medulloblastomas but PNETs occur primarily in the cerebrum (versus the cerebellum in the case of medulloblastoma). The cells of these rare tumours are generally not alike and they are fast growing. PNET cells are found throughout the brain and tend to seed (spread in the spinal fluid).

Types of PNET include:

  • Cerebral neuroblastoma (located in hemispheres)
  • Ependymoblastoma (arises from ventricles)
  • Pineoblastoma (occurs in area of pineal gland)


Limited information regarding the symptoms of PNET.

Treatment / Standard of Care

PNETs are treated with complete surgical removal, if possible, and are followed by radiation and chemotherapy.


A prognosis is an estimate of the likely progress of a disease after a diagnosis, based on an average patient group. Since every person is different, please take time to talk with your health care team about how this information applies to you.

By clicking on 'Expand,' a statistic on the prognosis for primitive neuroectodermal tumours will be shown.

Expand for Prognosis Information

For brain tumour patients, a prognosis depends on several factors, which can include age and other health issues, the size of the tumour, its molecular profile, the type of tumour, how much can be removed, and its response to treatments such as chemotherapy and radiation therapy.

Limited information available for this type of tumour and/or related conditions.


Image credited to Paddy Mendez R. (Own work) [CC-BY-SA-3.0 (], via Wikimedia Commons

Jessie's story: A Mothers Day WishOn June 26, 2012 we welcomed our beautiful baby boy Kohen into the world. He was perfect, born naturally at forty weeks plus one day, weighing in at seven pounds twelve ounces; little did we know that two years eight months later he would be fighting for his life and that the world as we knew it would be forever changed.

Learn more... 


Share This

Featured Story

Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour growth is stable” and for a moment you think someone is playing the world’s worst prank on you.

Learn more


Stephen's Story: "I have faith that we will meet again"

Stephen and I chatted on what should have been his 32nd Wedding Anniversary. Stephen and Susan were married for 30 years and were best...

Learn more

Tommy's Story: Fellowship recipient

Dr. Tommy Alain, the very first research Fellow funded by Brain Tumour Foundation of Canada through the William Donald Nash Brain...

Learn more

Upcoming Events

  • 23/Jan/2018: Groupe de soutien virtuel: Un groupe de soutien virtuel pour personnes touchées par une tumeur... Learn more >
  • 25/Jan/2018: Virtual Support Group East: Virtual Support Group for Eastern Canada... Learn more >
  • 25/Jan/2018: Sarnia Support Group: Meets at St. Giles Presbyterian Church,770 Lakeshore Road Sarnia, ON... Learn more >
  • 29/Jan/2018: Greater Sudbury Support Group: Meets at The Parkside Centre, 140 Durham Street, Sudbury, Ontario... Learn more >
View All Events >
Thank you to the donors whose contributions make this website and all programs, services and research possible.

Copyright © 2018 Brain Tumour Foundation of Canada. Charitable Registration #BN118816339RR0001
35 Years