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Understanding the Journey: A Parent’s Guide to DIPG

Editor: Ruth I. Hoffman

Summary:

At 368 pages, the book provides practical and clinical information for families, doctors and caregivers who are faced with the complexities of the diffuse intrinsic pontine glioma, one of the deadliest pediatric brain tumors that currently has no known cause or cure.

Chapters include information about diagnosis, imaging, pontine function and anatomy, steroid treatment, radiation therapy, radiosensitizers, surgery, and chemotherapy and biologics. Each chapter concludes with parent perspectives on each topic – poignant, first-person accounts of their own experiences caring for their child diagnosed with DIPG