Stories: In Your Words

Your stories. Written by you.

This collection of personal stories have been written by brain tumour patients and survivors as well as their loved ones. They are personal perspectives on about how patients and families find strength and hope and stories of perseverance.

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared.  You can share your story by entering it on the Share Your Story form now!

Anthony

Anthony's Story / Our Story

I would like to take the opportunity to share "our" story. It’s actually my best friend Anthony's story, but I use the term "our" because when someone is diagnosed with a brain tumour, they don't go through it alone. Everyone who loves and cares for the patient goes through it too. Not to take anything away from the patient themselves, and not comparing the loved one's experience to what a patient goes through but from an emotional standpoint, it can take a toll on loved ones as well.

Andrew

Andrew's Story: Hope

Friday June 3 is a date I wish I could forget. On this exact day and date in 1977 I was diagnosed with the first of my 4 brain tumours, and on the 13th anniversary, also a Friday, I was diagnosed with another tumour. This one, the first of 4, was a Medulloblastoma which was treated with surgery, chemotherapy and radiation.

Andrew

Andrew's Story

I grew up just like any other kid back in the early 70′s. Life was great until in 1976 when my best friend lost a leg to cancer. I remember saying to myself, “I hope that never happens to me”. Well, in June of 1977, Friday the 3rd to be exact, I was diagnosed with a very large Medulloblastoma of the Cerebellum and Fourth Ventricle.

Avery

Avery's Story: Adventures and Accomplisments

Last year, she started to complain about her neck hurting. She is a weird sleeper so we thought that she just slept funny or she did something at school that may have strained her neck a little bit. We would use a heating pad on very low heat, and that made it feel a bit better. There was a stretch of time when her neck hurt for two weeks and again, I assumed that it was just kids being kids and doing things that adults could probably not do at all now. She started to walk and became more clumsy

Andrea

Andrea's Story: One Mother Pushes for Help

My just three-year-old daughter had been really ‘off’ and sick for 2 months. She would vomit for no reason and had headaches at the back of her head. I took her to the family doctor three times and then had an appointment for January with a local pediatrician but in early November, it all just got to be too much. I pushed to see the the pediatrician then. That saved my daughter’s life.

Aleksandra

Aleksandra's Story

Hi to all of you my dear friends! I been diagnosed with epidermoid brain cyst/tumor close to my basilar artery and I want to share my story with the hope that I may help somebody – and we can together change the future. I had been having a low-grade fever for more than 6 years and “flu flare” every 2-3 months.

Alan

Alan's Story

“The Strange Case of Dr Jekyll and Mr Hyde” pretty well describes my life with a pituitary adenoma – more specifically a prolactinoma. In Robert Louis Stevenson’s novella of 1886, Mr Hyde grows so strong that Dr Jekyll becomes reliant on the potion to remain himself. My tumour is an insidiously slow growing one that, like Mr Hyde, creeps into your life to take over. I rely on my daily potions keeping Mr Hyde at bay.

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Featured Story

Childhood Brain Tumour Signs & Symptoms

Earlier this year, you gave us your feedback in a survey on brain tumour signs and symptoms. One of the things we did with that survey was to compile a list of the most common signs & symptoms for children. Now, as part of Childhood Cancer Awareness Month, we are sharing compelling quotes from that survey and urging you to share them with this link to see the symptoms: www.braintumour.ca/symptoms. Thank you!

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Spotlight

Anthony's Story is Our Story

I would like to take the opportunity to share "our" story. It’s actually my best friend Anthony's story, but I use the term "our"...

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Kate's Mum's Story

"May 2006 is a month I will never forget. That was the moment that everything became before the cancer, and after the cancer. It was a...

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