Stories: In Your Words

Your stories. Written by you.

This collection of personal stories have been written by brain tumour patients and survivors as well as their loved ones. They are personal perspectives on about how patients and families find strength and hope and stories of perseverance.

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared.  You can share your story by entering it on the Share Your Story form now!


Andrew's Story: Hope

Friday June 3 is a date I wish I could forget. On this exact day and date in 1977 I was diagnosed with the first of my 4 brain tumours, and on the 13th anniversary, also a Friday, I was diagnosed with another tumour. This one, the first of 4, was a Medulloblastoma which was treated with surgery, chemotherapy and radiation.


Andrew's Story

I grew up just like any other kid back in the early 70′s. Life was great until in 1976 when my best friend lost a leg to cancer. I remember saying to myself, “I hope that never happens to me”. Well, in June of 1977, Friday the 3rd to be exact, I was diagnosed with a very large Medulloblastoma of the Cerebellum and Fourth Ventricle.


Avery's Story: Adventures and Accomplisments

Last year, she started to complain about her neck hurting. She is a weird sleeper so we thought that she just slept funny or she did something at school that may have strained her neck a little bit. We would use a heating pad on very low heat, and that made it feel a bit better. There was a stretch of time when her neck hurt for two weeks and again, I assumed that it was just kids being kids and doing things that adults could probably not do at all now. She started to walk and became more clumsy


Andrea's Story: One Mother Pushes for Help

My just three-year-old daughter had been really ‘off’ and sick for 2 months. She would vomit for no reason and had headaches at the back of her head. I took her to the family doctor three times and then had an appointment for January with a local pediatrician but in early November, it all just got to be too much. I pushed to see the the pediatrician then. That saved my daughter’s life.


Aleksandra's Story

Hi to all of you my dear friends! I been diagnosed with epidermoid brain cyst/tumor close to my basilar artery and I want to share my story with the hope that I may help somebody – and we can together change the future. I had been having a low-grade fever for more than 6 years and “flu flare” every 2-3 months.


Alan's Story

“The Strange Case of Dr Jekyll and Mr Hyde” pretty well describes my life with a pituitary adenoma – more specifically a prolactinoma. In Robert Louis Stevenson’s novella of 1886, Mr Hyde grows so strong that Dr Jekyll becomes reliant on the potion to remain himself. My tumour is an insidiously slow growing one that, like Mr Hyde, creeps into your life to take over. I rely on my daily potions keeping Mr Hyde at bay.

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Grey Matters - Blogger Tuesdays

Have you seen our blog lately? Read about people who are making a difference in the brain tumour community from our staff and volunteers to our donors, funded researchers, and medical experts. You will find advice, news, information, and interesting stories about people affected by a brain tumour. Who doesn't love a good story? You won't want to miss the inside scoop Grey Matters has in store for you!

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Roy and the Gamma Knife – A Happy Tale

I had headaches, almost daily, for 10 years or more. It was a rare day if I did not have a headache. I used to joke that I should own...

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Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour...

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