Stories: In Your Words

Your stories. Written by you.

This collection of personal stories have been written by brain tumour patients and survivors as well as their loved ones. They are personal perspectives on about how patients and families find strength and hope and stories of perseverance.

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared.  You can share your story by entering it on the Share Your Story form now!

Courtney’s Story of Stability

Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour growth is stable” and for a moment you think someone is playing the world’s worst prank on you.

Catarina

Catarina's Story: Crush Cushing’s

I was always healthy growing up. Between the ages of 14-21 I lost a lot of weight, although my medical tests always came back as normal. In grades 10 and 12, I missed a lot of school because I was always feeling ill; panic attacks, my digestive system would stop functioning correctly, I was stressed, and I always had headaches. Anxiety and depression also runs in my family, so I thought it was just that – genetic.

Carol

Carol's Story

I am writing ten weeks after I underwent surgery to remove a meningioma tumour from the left lateral side of my brain. The operation was in November 2016. The tumour symptom that originally sent me to my MD was an accelerating loss of vocabulary. He ordered a CT scan which diagnosed the tumour and before long I was also having small seizures roughly twice per week.

Christianne

Christianne's Story: Live life to the fullest

When I was diagnosed with a Pilocytic Astrocytoma, I was 10 years old. I knew I had neurofibromatosis but I never thought this would happen to me. All I cared about at that age was who my next soccer game was against, and swimming in my babysitter's pool. My parents took me to the doctor all the time because they knew something was wrong. I was 49 pounds, 49 inches tall, and I wasn't growing or gaining weight. The doctor told me I was anorexic, even though I had no idea what that meant.

Claire

Claire's Story: Two Steps Forward

14 May 2010, a spinning room upon waking – my first vertigo attack and the onset of my first migraine, prompted a CT scan. I remember lying in the ER room listening to the doctors outside discussing the scans of a rare brain tumour; little did I know they were talking about me.

Christine

Christine's Story of Hope

Well, I actually diagnosed myself while on vacation with my husband in Hawaii but a neurosurgeon confirmed by worst fear on March 6, 2014; I had a large brain tumor called a glioblastoma. The surgery was long but successful.

Carolyn

Carolyn's Story

My brain tumour journey started on July 2nd 2007, the Saturday of a long weekend. I had gone shopping with my daughter and she complained that I kept walking into her during our walk in the mall. On my return home I experienced a severe headache the kind of which I had never experienced before. I took a few different over-the-counter medications, to try to relieve this headache, nothing worked.

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Featured Story

Tracey’s Story: Hope and Optimism

Headaches are like house guests. Some come and go. Others don’t want to leave; and become a real nuisance. Tracey’s headache lasted a full 6 months but it still wasn’t enough of a warning sign. What she had was a tumour in her brain, discovered when it caused hydrocephalus, put her in a coma for two days and she was just hours from death. Four brain surgeries later, Tracey is here to tell her story, and importantly, how she found ways to remain optimistic in the face of grave adversity.

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Spotlight

Andrew’s story of being tough

What do you see when you look in the mirror? When Andrew’s friend looked at him, he saw an immensely tough person and wanted to let...

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Hats for Hope

Today, 8 Canadians will learn they have brain cancer. That's 3,000 Canadians each year. That's why we have launched Hats for Hope a...

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Upcoming Events

  • 22/Nov/2018: Virtual Support Group East: Virtual Support Group for Eastern Canada... Learn more >
  • 26/Nov/2018: Greater Sudbury Support Group: Meets at The Parkside Centre, 140 Durham Street, Sudbury, Ontario... Learn more >
  • 27/Nov/2018: Groupe de soutien virtuel: Un groupe de soutien virtuel pour personnes touchées par une tumeur... Learn more >
  • 27/Nov/2018: Power, Point & Shoot: University of Alberta... Learn more >
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