Stories: In Your Words

Your stories. Written by you.

This collection of personal stories have been written by brain tumour patients and survivors as well as their loved ones. They are personal perspectives on about how patients and families find strength and hope and stories of perseverance.

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared.  You can share your story by entering it on the Share Your Story form now!

Katherine

Katherine's Story: Filled with gratitude

I was diagnosed with Anaplastic-Ependymoma, stage 3 brain cancer, at the age of twelve. By my second surgery, my neurosurgeon had mentioned that I would be hospitalized for three to eight weeks after my surgery, and I would start physiotherapy (starting with sitting up) later that week; that was a no-no for me! I told my neurosurgeon that I would be home five days later, and my neurosurgeon had smiled and then said that I should wait and see how I feel after my surgery.

Kaiden

Kaiden's Story

In March 2015, while travelling to Montreal, we received the news that our beautiful 22 month old boy (Kaiden) had been diagnosed with brain cancer. He was having some flu-like symptoms which didn't seem to go away and after 1 walk-in, 3 ER visits and much worrying from those who love him, a CT scan and MRI revealed a large tumour in the lower-back side of his brain attached to his cerebellum and also showed some metastasis (spread) to his spinal cord.

Kelsey

Kelsey's Story

In September 2010, Kelsey started grade 7. On Monday, September 13, she began to suffer from headaches, nausea and blurred vision. After numerous trips to the family doctor and to the urgent care facility in Fort Erie, she was referred to a pediatrician at Welland General Hospital. On September 15, a CT scan was performed and a mass in her brain was discovered. She was immediately referred to McMaster Children’s Hospital in Hamilton.

Kristi and Aaron

Kristi and Aaron's Story

I have been in love with Aaron since I was 14 years old. Our lives took different paths after highschool though and it wasn’t until 2007 that we reconnected on Facebook and soon after fell deeply in love. In Oct ’09, one month after our fairytale wedding, I noticed things began to change.

Kimm

Kimm's Story: Not letting it get the best of me

For me, the waiting is the hardest part. Not the surgery, not the radiation or steroids (though those were no picnic), but the waiting. Since my first seizure on January 24, 2010, it’s been a roller-coaster of discovery, treatment, recovery, and yes, waiting

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Featured Story

Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour growth is stable” and for a moment you think someone is playing the world’s worst prank on you.

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Spotlight

Stephen's Story: "I have faith that we will meet again"

Stephen and I chatted on what should have been his 32nd Wedding Anniversary. Stephen and Susan were married for 30 years and were best...

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Tommy's Story: Fellowship recipient

Dr. Tommy Alain, the very first research Fellow funded by Brain Tumour Foundation of Canada through the William Donald Nash Brain...

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Upcoming Events

  • 16/Jan/2018: North Bay Support Group: Meets at St. Luke's Catholic Elementary School, 225 Milani Road, North Bay.... Learn more >
  • 16/Jan/2018: New Glasgow Support Group: Meets at East Haven Manor, 695 East River Road in New Glasgow, NS ... Learn more >
  • 17/Jan/2018: Windsor Support Group: Meets at the United Way, Unit A1, 300 Giles Blvd. East... Learn more >
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35 Years