Stories: In Your Words

Your stories. Written by you.

This collection of personal stories have been written by brain tumour patients and survivors as well as their loved ones. They are personal perspectives on about how patients and families find strength and hope and stories of perseverance.

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared.  You can share your story by entering it on the Share Your Story form now!


Katherine's Story: Filled with gratitude

I was diagnosed with Anaplastic-Ependymoma, stage 3 brain cancer, at the age of twelve. By my second surgery, my neurosurgeon had mentioned that I would be hospitalized for three to eight weeks after my surgery, and I would start physiotherapy (starting with sitting up) later that week; that was a no-no for me! I told my neurosurgeon that I would be home five days later, and my neurosurgeon had smiled and then said that I should wait and see how I feel after my surgery.


Kaiden's Story

In March 2015, while travelling to Montreal, we received the news that our beautiful 22 month old boy (Kaiden) had been diagnosed with brain cancer. He was having some flu-like symptoms which didn't seem to go away and after 1 walk-in, 3 ER visits and much worrying from those who love him, a CT scan and MRI revealed a large tumour in the lower-back side of his brain attached to his cerebellum and also showed some metastasis (spread) to his spinal cord.


Kelsey's Story

In September 2010, Kelsey started grade 7. On Monday, September 13, she began to suffer from headaches, nausea and blurred vision. After numerous trips to the family doctor and to the urgent care facility in Fort Erie, she was referred to a pediatrician at Welland General Hospital. On September 15, a CT scan was performed and a mass in her brain was discovered. She was immediately referred to McMaster Children’s Hospital in Hamilton.

Kristi and Aaron

Kristi and Aaron's Story

I have been in love with Aaron since I was 14 years old. Our lives took different paths after highschool though and it wasn’t until 2007 that we reconnected on Facebook and soon after fell deeply in love. In Oct ’09, one month after our fairytale wedding, I noticed things began to change.


Kimm's Story: Not letting it get the best of me

For me, the waiting is the hardest part. Not the surgery, not the radiation or steroids (though those were no picnic), but the waiting. Since my first seizure on January 24, 2010, it’s been a roller-coaster of discovery, treatment, recovery, and yes, waiting

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Featured Story

Grey Matters - Blogger Tuesdays

Have you seen our blog lately? Read about people who are making a difference in the brain tumour community from our staff and volunteers to our donors, funded researchers, and medical experts. You will find advice, news, information, and interesting stories about people affected by a brain tumour. Who doesn't love a good story? You won't want to miss the inside scoop Grey Matters has in store for you!

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Roy and the Gamma Knife – A Happy Tale

I had headaches, almost daily, for 10 years or more. It was a rare day if I did not have a headache. I used to joke that I should own...

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Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour...

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Upcoming Events

  • 20/Mar/2018: North Bay Support Group: Meets at St. Luke's Catholic Elementary School, 225 Milani Road, North Bay.... Learn more >
  • 20/Mar/2018: Groupe de soutien virtuel: Un groupe de soutien virtuel pour personnes touchées par une tumeur... Learn more >
  • 20/Mar/2018: Windsor Support Group: Meets at the United Way, Unit A1, 300 Giles Blvd. East... Learn more >
  • 20/Mar/2018: Halifax Support Group: Meets at The Lodge That Gives, 5826 South Street, Halifax, NS... Learn more >
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