Stories: In Your Words

Your stories. Written by you.

This collection of personal stories have been written by brain tumour patients and survivors as well as their loved ones. They are personal perspectives on about how patients and families find strength and hope and stories of perseverance.

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared.  You can share your story by entering it on the Share Your Story form now!

Moxie

Moxie's Story: The brain tumour that tried to kill me slowly

It's been 3 months since my transsphenoidal pituitary surgery. I'm still trying to piece my story together. I think it begins with the pregnancy and birth of my last child in 2012. After 3 exemplary pregnancies and home births, I never expected the cholestasis, a 36-week breech & manual turn, or a retained placenta, and near fatal delivery. After successfully nursing 3 children, I struggled to produce enough milk and gave up after 3 months.

Meagan

Meagan's Story: Helping others in a new way

When you receive a call and hear the words “the doctor wants to see you ASAP” – you know that can’t be good. “So on your MRI they did find a mass – a little bigger than a golf ball and we are referring you to a really great team”. What do you mean mass? Like a tumour? But how can this be? I already have so much on my plate why do you need to throw this my way? I just had a major car crash, was that not enough already?

Martha

Martha's Story: Brian's Brain

Thieves broke into our apartment years ago when we were newly married, stole Brian’s wallet, and then tried to buy gas for their getaway by forging the Visa bill under the name: Brain Brooks. Forty-four years later my handsome husband with his beautiful mind was diagnosed with brain cancer and we spent the next year grieving the unthinkable — his death, and celebrating the amazing — his life. What can I say about that journey other than it was painful and, in a sadly wonderful way, transforming.

Mike

Mike's Story: Success CAN happen

I had suffered from seizure disorder since I was 15. I am 59 years old now. In 1989 my neurologist did an MRI scan and found a tumour in the right temporal lobe of my brain. It was a sizable tumour and he decided that surgery was in order. In 1990 the surgery took place and during the surgery he also removed the focus of my epilepsy in the centre of my brain. I was released within 10 days of the surgery. Thankfully the tumour was non-malignant.

Matthew

Matthew's Story

On the November 9, 2011, I had my first grand-mal seizure. I was on vacation with my wife and son visiting her mother in Labrador. I was rushed to the hospital where I had a CT scan. The doctors found what they described as a "growth" on my brain.

Matthew

Matthew's Story

Dates can mean a lot to an individual. A birthday, anniversary, or in this case, days that changed my families life. Well January 24th 1990 is a day that my mother will never forget. It was the day her little baby boy was born.

Michelle and Joey

Michelle and Joey's Story

As of Today Oct 1, 2014 Joey continues to fight his Glioblastoma, he is still unable to walk because of it, but he is here with us and doing very well so far, he continues to undergo Chemo 5/23 maintenance Chemo as they call it, and so far it seems to be working, Joey had an MRI in July and at that time the tumor has shown signs of shrinking, that was a very joyous day for us.

Marie

Marie's Story

On November 19th, 2010 my life changed forever. Up until that day, I defined myself as wife, mother and high school teacher. I loved my life. But on November 19th, it changed forever. That was the day that I had a 10-hour brain surgery to remove a golf ball sized tumour from the left side of my brain.

Margaret

Margaret's Story: Trick or Treat

October 31, 2013: Halloween morning I woke up with a sudden severe headache on the right side of my forehead with vomiting, nausea, and diarrhea. During a second visit to the hospital emergency department, a CT scan revealed a probable brain tumour. Was this a trick? Is this a nightmare?

Marisa

Marisa's Story: Being strong for my big brother

My brother and I never had the greatest relationship growing up. We fought argued bickered and pulled each others hair out…literally. But on April 5th, 2013 we found out he had a brain tumour, it was that moment that I realized that beneath all the fussing and fighting, the love that I have for my brother is colossal.

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Featured Story

Tracey’s Story: Hope and Optimism

Headaches are like house guests. Some come and go. Others don’t want to leave; and become a real nuisance. Tracey’s headache lasted a full 6 months but it still wasn’t enough of a warning sign. What she had was a tumour in her brain, discovered when it caused hydrocephalus, put her in a coma for two days and she was just hours from death. Four brain surgeries later, Tracey is here to tell her story, and importantly, how she found ways to remain optimistic in the face of grave adversity.

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Spotlight

Andrew’s story of being tough

What do you see when you look in the mirror? When Andrew’s friend looked at him, he saw an immensely tough person and wanted to let...

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Hats for Hope

Today, 8 Canadians will learn they have brain cancer. That's 3,000 Canadians each year. That's why we have launched Hats for Hope a...

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Upcoming Events

  • 22/Nov/2018: Virtual Support Group East: Virtual Support Group for Eastern Canada... Learn more >
  • 26/Nov/2018: Greater Sudbury Support Group: Meets at The Parkside Centre, 140 Durham Street, Sudbury, Ontario... Learn more >
  • 27/Nov/2018: Groupe de soutien virtuel: Un groupe de soutien virtuel pour personnes touchées par une tumeur... Learn more >
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