Stories: In Your Words

Your stories. Written by you.

This collection of personal stories have been written by brain tumour patients and survivors as well as their loved ones. They are personal perspectives on about how patients and families find strength and hope and stories of perseverance.

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared.  You can share your story by entering it on the Share Your Story form now!


Moxie's Story: The brain tumour that tried to kill me slowly

It's been 3 months since my transsphenoidal pituitary surgery. I'm still trying to piece my story together. I think it begins with the pregnancy and birth of my last child in 2012. After 3 exemplary pregnancies and home births, I never expected the cholestasis, a 36-week breech & manual turn, or a retained placenta, and near fatal delivery. After successfully nursing 3 children, I struggled to produce enough milk and gave up after 3 months.


Meagan's Story: Helping others in a new way

When you receive a call and hear the words “the doctor wants to see you ASAP” – you know that can’t be good. “So on your MRI they did find a mass – a little bigger than a golf ball and we are referring you to a really great team”. What do you mean mass? Like a tumour? But how can this be? I already have so much on my plate why do you need to throw this my way? I just had a major car crash, was that not enough already?


Martha's Story: Brian's Brain

Thieves broke into our apartment years ago when we were newly married, stole Brian’s wallet, and then tried to buy gas for their getaway by forging the Visa bill under the name: Brain Brooks. Forty-four years later my handsome husband with his beautiful mind was diagnosed with brain cancer and we spent the next year grieving the unthinkable — his death, and celebrating the amazing — his life. What can I say about that journey other than it was painful and, in a sadly wonderful way, transforming.


Mike's Story: Success CAN happen

I had suffered from seizure disorder since I was 15. I am 59 years old now. In 1989 my neurologist did an MRI scan and found a tumour in the right temporal lobe of my brain. It was a sizable tumour and he decided that surgery was in order. In 1990 the surgery took place and during the surgery he also removed the focus of my epilepsy in the centre of my brain. I was released within 10 days of the surgery. Thankfully the tumour was non-malignant.


Matthew's Story

On the November 9, 2011, I had my first grand-mal seizure. I was on vacation with my wife and son visiting her mother in Labrador. I was rushed to the hospital where I had a CT scan. The doctors found what they described as a "growth" on my brain.


Matthew's Story

Dates can mean a lot to an individual. A birthday, anniversary, or in this case, days that changed my families life. Well January 24th 1990 is a day that my mother will never forget. It was the day her little baby boy was born.

Michelle and Joey

Michelle and Joey's Story

As of Today Oct 1, 2014 Joey continues to fight his Glioblastoma, he is still unable to walk because of it, but he is here with us and doing very well so far, he continues to undergo Chemo 5/23 maintenance Chemo as they call it, and so far it seems to be working, Joey had an MRI in July and at that time the tumor has shown signs of shrinking, that was a very joyous day for us.


Marie's Story

On November 19th, 2010 my life changed forever. Up until that day, I defined myself as wife, mother and high school teacher. I loved my life. But on November 19th, it changed forever. That was the day that I had a 10-hour brain surgery to remove a golf ball sized tumour from the left side of my brain.


Margaret's Story: Trick or Treat

October 31, 2013: Halloween morning I woke up with a sudden severe headache on the right side of my forehead with vomiting, nausea, and diarrhea. During a second visit to the hospital emergency department, a CT scan revealed a probable brain tumour. Was this a trick? Is this a nightmare?


Marisa's Story: Being strong for my big brother

My brother and I never had the greatest relationship growing up. We fought argued bickered and pulled each others hair out…literally. But on April 5th, 2013 we found out he had a brain tumour, it was that moment that I realized that beneath all the fussing and fighting, the love that I have for my brother is colossal.

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Featured Story

Roy and the Gamma Knife – A Happy Tale

I had headaches, almost daily, for 10 years or more. It was a rare day if I did not have a headache. I used to joke that I should own stock in headache remedy companies. I also had a lot of night sweats, non-restful sleep, and trouble regulating my body temperature. All these symptoms both my GP and I put off to stress.

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Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour...

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Stephen's Story: "I have faith that we will meet again"

Stephen and I chatted on what should have been his 32nd Wedding Anniversary. Stephen and Susan were married for 30 years and were best...

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