Stories: In Your Words

Your stories. Written by you.

This collection of personal stories have been written by brain tumour patients and survivors as well as their loved ones. They are personal perspectives on about how patients and families find strength and hope and stories of perseverance.

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared.  You can share your story by entering it on the Share Your Story form now!

Roy and the Gamma Knife – A Happy Tale

Roy and the Gamma Knife – A Happy Tale

I had headaches, almost daily, for 10 years or more. It was a rare day if I did not have a headache. I used to joke that I should own stock in headache remedy companies. I also had a lot of night sweats, non-restful sleep, and trouble regulating my body temperature. All these symptoms, both my GP and I put off to stress. My marriage was not great, I didn’t enjoy my job … I thought it was stress.


Roksana's story: Dancing into a new life journey

For anyone thinking, 'what are the consequences of a brain tumour operation?' I would say: "Expect a big surprise when you first look in the mirror" as you will suddenly find out that all your hair has been shaved. But to be optimistic and inspiring you have to think of how to turn a shaven head, and later funny looking hair, into something which looks like a choice. I started with a blonde wig!

Ruth and Victoria

Ruth and Victoria's Story

My loving partner, Victoria Lee, died of an oliodendroglioma brain tumour in late 2013. She had been diagnosed in 2001 and fought the disease for twelve years. Our name for it was “ugly oli,” and from the moment it came into our lives, it parked itself in our space and from there forward, controlled our every move. It took any sense of normalcy from our world and changed our lives forever. This is my tribute to Victoria.


Rachel's Story

As I approach the one year anniversary of my diagnosis, I am looking back to see how far I have come. I have told my story many times to many people. I share it with you and the community hoping that maybe it may help even one person.


Rosy's Story

On the January 1st, 2008, our first baby daughter Rosy was born. She was in a good health, lots of energy. She start to stand up by herself in 9 months. We celebrated her first birthday with family and friends. My husband and I spent one great year with Rosy. Unfortunately on January 29, 2009 Rosy start to vomit. We were thinking that it was normal. Family would say, "she is teething."


Rozana's Story

When I was diagnosed with a brain tumor at 40, I never could have imagined the impact in would have on my life. What I know for sure is that my husband’s support, encouragement and love kept me alive, motivated and helped me heal inside and out. Following months of severe headaches, dizziness and vomiting, I finally had an MRI on July 24, 2010. The scan found a 5x5 tumor on my brain stem under my cerebellum. I was transferred to Toronto Western hospital to have surgery immediately.

Renate’s Story

Renate’s Story

I have been wanting to write about my Mom’s story for over a year now, but I just couldn’t do it. But I am ready now. Renate Kebbert, my Mom was an absolutely amazing Mom, wife, and friend. She was one of those people that was always there for others, she was my and my sister’s biggest supporter in everything we did, she helped others when they needed it and never asked for anything in return, I can’t say enough about her, she was just the most amazing person ever.


Rebecca's Story

My story began a long time prior to me being diagnosed. I had been feeling all over unwell for quite some time (at least 1 1/2 to 2 years). Some of my symptoms were excessive tiredness, general lethargy, short blindness spells each and every morning when I first woke up, mood changes and irritability. I had been going to see my doctor on a regular basis and I was unable to give any specific issues as to where I felt sick but I just felt wrong. I had also been seen by a psychiatrist who advised m


Rosie's Story

Rosie was diagnosed at age 2 with medulloblastoma – a type of malignant brain tumour. She spent months of surgeries and chemotherapy treatments. After 5 months, Rosie has officially finished her treatment protocol for her type of cancer. She completed 6 Chemotherapy cycles, 7 surgeries, 30 scans & test, and 103 blood work. She received 3 Stem Cell Transplant, 21 blood product transfusion, and 13 TPN & lipids. And she survived total of 41 days in isolation.

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Featured Story

Kate's Mum's Story

"May 2006 is a month I will never forget. That was the moment that everything became before the cancer, and after the cancer. It was a mark in time that would forever change my family"... Read more about Kate's Mum's story from her diagnosis of glioblastoma in 2006 and how Mum has beaten the odds to still be here today.

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Roy and the Gamma Knife – A Happy Tale

I had headaches, almost daily, for 10 years or more. It was a rare day if I did not have a headache. I used to joke that I should own...

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Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour...

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