Stories: In Your Words

Your stories. Written by you.

This collection of personal stories have been written by brain tumour patients and survivors as well as their loved ones. They are personal perspectives on about how patients and families find strength and hope and stories of perseverance.

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared.  You can share your story by entering it on the Share Your Story form now!

Sara Shor’s Story of Hope

Sara Shor’s Story of Hope

I moved to Canada from Mexico City in November 2011. Soon after my arrival, I started having very strong headaches. The doctors thought I was experiencing migraines and treated me accordingly, but the headaches worsened to the point that they woke me up at night and I couldn’t function properly during the day. I started to feel very weak and dizzy, with episodes sometimes persisting for days. I took many painkillers and went to the Emergency Room a few times...

Seng

Seng's Story: Facts and Arguments: Smiling at Strangers

Dave and I would often comment to each other how lucky we were to not have experienced any major life changing events in our lives. My parents were affected by a war where bombs were falling around them, escaping and leaving everything behind with a baby in their arms. Later I was to be born in a refugee camp. Dave’s mom had a father who drowned when she was young, leaving his Grandma a widow with a young child and twin toddlers. We felt so thankful in life and appreciative of the life we lived.

Stephanie

Stephanie's Story: Shine!

When I was 7 years old, I remember having headaches every day. I became sensitive to loud noises like the school bus and bright lights and I was tired a lot. I remember everyone telling me that I might need glasses, but every optometrist we saw said I had perfect vision. One night, my mom looked over at me and my one eye had turned inwards. Shortly after, I was diagnosed with a Craniopharyngioma...

Sevanah’s Story: Grace and Faith in the Midst of Tragedy

Sevanah’s Story: Grace and Faith in the Midst of Tragedy

Sevanah Kathleen Simmons was an active, normal six-year-old girl who loved singing, dancing her highland steps, creating artistic masterpieces, and writing and drawing her beloved monkey stories. She had 35+ monkey stuffies she fondly referred to as ‘The monkey crew’ and built extravagant monkey towns throughout the entire living room. Sevanah loved to read and learn which made home-schooling much easier for Gramma.

Susan

Susan's Story: From a Caregiver's perspective

In late summer of 2012, I started to notice changes to my 53 year old husband, an active and hardworking guy. Gradual changes of apathy to the things he loved to do. He absolutely loved umpiring locally and nationally and was very involved in a regional hockey board. He enjoyed his job as a heavy equipment operator. He started to talk about quitting the things he had been passionate about. I attributed that to a mid-life crisis...

Selina

Selina's Story: My Rapid Change in Life

My rapid change in life all began in 2010 when I found myself in the emergency room worrying that I had shown symptoms of a seizure. After a CT scan I was sent home with the results of no seizure activity and a business card for a Neurologist that would call me for an appointment. An MRI was to follow, and there was no sense of urgency.

Spring Sprint: Amber

Spring Sprint: Amber's Story

Amber was one of the very first people to register for Spring Sprint 2015. She lives in Calgary and is participating in memory of her husband Bruce. Her team name is 'JustDewar tumor'. This is her story. "Thank you for giving and, more importantly, for helping the 27 Canadians diagnosed daily with a brain tumour. You are changing lives."

Spring Sprint: Kathy

Spring Sprint: Kathy's Story

Kathy was one of the very first people to register for Spring Sprint 2015. She lives in Ottawa and is participating in honour of her husband Clarke. Their team name is 'Team Scobie'. This is their story. "Raising funds and awareness is key, we need to get this to the same level of awareness that we have for other cancers and the funds and research will follow."

Sharon

Sharon's Story

I am a married mother of 4, ages 12, 10, 8, and 3. Early in the spring of 2011, I began to have headaches. Initially, they started mild, and most often times, ibuprofen would help to alleviate their symptoms. As the weeks progressed, they began to get more debilitating; to the point I was not able to hold my head up during an “episode”.

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Featured Story

Grey Matters - Blogger Tuesdays

Have you seen our blog lately? Read about people who are making a difference in the brain tumour community from our staff and volunteers to our donors, funded researchers, and medical experts. You will find advice, news, information, and interesting stories about people affected by a brain tumour. Who doesn't love a good story? You won't want to miss the inside scoop Grey Matters has in store for you!

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Spotlight

Roy and the Gamma Knife – A Happy Tale

I had headaches, almost daily, for 10 years or more. It was a rare day if I did not have a headache. I used to joke that I should own...

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Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour...

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Upcoming Events

  • 20/Apr/2018: Caregiver Wellness Day: Royal Oaks Golf Club, Moncton, NB... Learn more >
  • 25/Apr/2018: Toronto Support Group: Meets at Wellspring Westerkirk House at Sunnybrook, Toronto, ON... Learn more >
  • 25/Apr/2018: Ottawa Support Group: Meets at the Maplesoft Centre at 1500 Alta Vista Drive, Ottawa, ON.... Learn more >
  • 26/Apr/2018: Brain Fair: BMO Centre, 295 Rectory St, London, ON... Learn more >
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