Stories: In Your Words

Your stories. Written by you.

This collection of personal stories have been written by brain tumour patients and survivors as well as their loved ones. They are personal perspectives on about how patients and families find strength and hope and stories of perseverance.

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared.  You can share your story by entering it on the Share Your Story form now!

Traci

Traci's story: Taking it one day at a time.

About three years ago, I noticed that the hearing in my right ear was fading. I saw my family doctor who diagnosed me with inner ear fluid. "It will disappear on its own" he said. After surgery on my shoulder in August 2015, I became aware that I was off balance and had a ringing in my ear that meant I couldn't hear from that side. Attributing this to pain medication and inner ear fluid, I thought nothing more about it until January 2016 when vertigo set in.

Tyler’s Story: Every day I fight

Tyler’s Story: Every day I fight

At 23 I had everything. After six years of working as a conductor, I had saved enough money to buy my first house and a new car. It was also at age 23 where I started to get severe headaches that took me to the hospital. After my second visit they finally did some tests. I had a CT scan, they hooked me up to an IV and heart monitor, and was told to sit tight and wait. After about 30 minutes three doctors came over and closed all of the curtains around me. “We found something in your head”.

Trina

Trina's Story

I'm not really sure where to start, but when I was little, the doctors told my Mother who adopted me that I was visually impaired and I would eventually lose my sight. My Mother, understandably, was in shock, but nevertheless, never gave up on me. She always had my back and loved me unconditionally. One of the doctors told her that I would never walk or talk. When I was 4 years old, my mother and I walked into the doctor’s office together. She told me that his mouth was gaping open with shock.

Tanya

Tanya's Story

These weren’t ordinary headaches. They were intense. So intense that Tanya Swanson found herself vomiting from the pressure and pain that seared into the back of her head through the back of her head. “It wasn’t normal. You know when something’s wrong with your body,” she says.

Tom

Tom's Story

For several months now I have debated about putting my story on the website. On November 1st, 2010 I had a 48mm Non-Malignant Meningioma Brain Tumour removed from just above my right ear. Although at the time it was terrifying, when I look back at my “journey”, it truly pales in comparison to so many that I have read about … My journey today (October 5th,2011) is all but over-and all is great – but for so, so many the journey is only beginning.

Tyler

Tyler's Story

Today, Tyler is a healthy, thriving 7 year old. He has a few lingering issues related to his tumour, but otherwise is doing very well. Tyler is believed to have been born with his brain stem tumour. Unfortunately, despite MANY non-textbook symptoms (ie chronic cough, sensitive gag reflex…etc), it took Tyler’s doctors nearly 3.5 years to diagnose Tyler’s tumour.

Tami

Tami's Story

On October 6, 2011, I was diagnosed with a meningioma brain tumour. A few days before the diagnosis, my journey began when I woke up from my sleep, with a bad case of dizziness, spinning and eventually vomiting. I had never been that sick in my life!

Tara

Tara's Story

My name is Tara, and I am a 32-year-old brain cancer patient. In August of 2010, when I was just 30, I was experiencing odd episodes where it would feel like a hot liquid was running through my chest, I would smell a strong chemical smell high in my nostrils, and I would stop in my tracks while experiencing a ‘deja vu’ experience.

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Featured Story

Grey Matters - Blogger Tuesdays

Have you seen our blog lately? Read about people who are making a difference in the brain tumour community from our staff and volunteers to our donors, funded researchers, and medical experts. You will find advice, news, information, and interesting stories about people affected by a brain tumour. Who doesn't love a good story? You won't want to miss the inside scoop Grey Matters has in store for you!

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Spotlight

Roy and the Gamma Knife – A Happy Tale

I had headaches, almost daily, for 10 years or more. It was a rare day if I did not have a headache. I used to joke that I should own...

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Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour...

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  • 25/Apr/2018: Ottawa Support Group: Meets at the Maplesoft Centre at 1500 Alta Vista Drive, Ottawa, ON.... Learn more >
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