Stories: In Your Words

Your stories. Written by you.

This collection of personal stories have been written by brain tumour patients and survivors as well as their loved ones. They are personal perspectives on about how patients and families find strength and hope and stories of perseverance.

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared.  You can share your story by entering it on the Share Your Story form now!

Traci

Traci's story: Taking it one day at a time.

About three years ago, I noticed that the hearing in my right ear was fading. I saw my family doctor who diagnosed me with inner ear fluid. "It will disappear on its own" he said. After surgery on my shoulder in August 2015, I became aware that I was off balance and had a ringing in my ear that meant I couldn't hear from that side. Attributing this to pain medication and inner ear fluid, I thought nothing more about it until January 2016 when vertigo set in.

Tyler’s Story: Every day I fight

Tyler’s Story: Every day I fight

At 23 I had everything. After six years of working as a conductor, I had saved enough money to buy my first house and a new car. It was also at age 23 where I started to get severe headaches that took me to the hospital. After my second visit they finally did some tests. I had a CT scan, they hooked me up to an IV and heart monitor, and was told to sit tight and wait. After about 30 minutes three doctors came over and closed all of the curtains around me. “We found something in your head”.

Trina

Trina's Story

I'm not really sure where to start, but when I was little, the doctors told my Mother who adopted me that I was visually impaired and I would eventually lose my sight. My Mother, understandably, was in shock, but nevertheless, never gave up on me. She always had my back and loved me unconditionally. One of the doctors told her that I would never walk or talk. When I was 4 years old, my mother and I walked into the doctor’s office together. She told me that his mouth was gaping open with shock.

Tanya

Tanya's Story

These weren’t ordinary headaches. They were intense. So intense that Tanya Swanson found herself vomiting from the pressure and pain that seared into the back of her head through the back of her head. “It wasn’t normal. You know when something’s wrong with your body,” she says.

Tom

Tom's Story

For several months now I have debated about putting my story on the website. On November 1st, 2010 I had a 48mm Non-Malignant Meningioma Brain Tumour removed from just above my right ear. Although at the time it was terrifying, when I look back at my “journey”, it truly pales in comparison to so many that I have read about … My journey today (October 5th,2011) is all but over-and all is great – but for so, so many the journey is only beginning.

Tyler

Tyler's Story

Today, Tyler is a healthy, thriving 7 year old. He has a few lingering issues related to his tumour, but otherwise is doing very well. Tyler is believed to have been born with his brain stem tumour. Unfortunately, despite MANY non-textbook symptoms (ie chronic cough, sensitive gag reflex…etc), it took Tyler’s doctors nearly 3.5 years to diagnose Tyler’s tumour.

Tami

Tami's Story

On October 6, 2011, I was diagnosed with a meningioma brain tumour. A few days before the diagnosis, my journey began when I woke up from my sleep, with a bad case of dizziness, spinning and eventually vomiting. I had never been that sick in my life!

Tara

Tara's Story

My name is Tara, and I am a 32-year-old brain cancer patient. In August of 2010, when I was just 30, I was experiencing odd episodes where it would feel like a hot liquid was running through my chest, I would smell a strong chemical smell high in my nostrils, and I would stop in my tracks while experiencing a ‘deja vu’ experience.

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Featured Story

Tracey’s Story: Hope and Optimism

Headaches are like house guests. Some come and go. Others don’t want to leave; and become a real nuisance. Tracey’s headache lasted a full 6 months but it still wasn’t enough of a warning sign. What she had was a tumour in her brain, discovered when it caused hydrocephalus, put her in a coma for two days and she was just hours from death. Four brain surgeries later, Tracey is here to tell her story, and importantly, how she found ways to remain optimistic in the face of grave adversity.

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Spotlight

Andrew’s story of being tough

What do you see when you look in the mirror? When Andrew’s friend looked at him, he saw an immensely tough person and wanted to let...

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Hats for Hope

Today, 8 Canadians will learn they have brain cancer. That's 3,000 Canadians each year. That's why we have launched Hats for Hope a...

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Upcoming Events

  • 22/Nov/2018: Virtual Support Group East: Virtual Support Group for Eastern Canada... Learn more >
  • 26/Nov/2018: Greater Sudbury Support Group: Meets at The Parkside Centre, 140 Durham Street, Sudbury, Ontario... Learn more >
  • 27/Nov/2018: Groupe de soutien virtuel: Un groupe de soutien virtuel pour personnes touchées par une tumeur... Learn more >
  • 27/Nov/2018: Power, Point & Shoot: University of Alberta... Learn more >
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