Julie's Story

Julie's Story

Hi, I am Julie, I am 57. In January 2013, I had a tooth removed because it was infected and was causing a great deal of pain. After a month of visiting the dentist, he told me my pain was now neurological.

I went to the medical clinic, had a scan for my sinuses and then they saw something but they were not precise about what it was..then I had the brain scan. It was then that I was told that I had a meningioma brain tumour, 3 cm in size, in the left frontal lobe!!

Prior to the tooth business, I was tired, had some nausea in the morning, ‘twingling’ on the left side of my head but did really think about that and continued my life. I tried to help some of the symptoms by excercing a lot with things like zumba, yoga, aerobics, Curves and walking almost every evening with my adorable husband.

In April, I saw the neurosurgeon, and three weeks later I was operated on. I then had four days in Intensive Care with pain, weakness, tiredness and 10 tubes plugged into me. I was very well taken care of.

For three weeks after the surgery, I was without a ‘bone flap’ in the forehead because of the cerebral edema. To protect me, they created a helmet to wear when I was moving around and walking. Then my bone flap was put back in place in May.

I appreciate all the help we had from so many people: My sister cooked meals for us, my sons visited, all my friends gave both presents and their presence, but the most precious gift of all was my husband. Everything he did and does, I love him so much!! It was very hard for him to see me like this…and today we love each other more and more.

Lately, I was told that the pain I have since having the second surgery was likely to last from six more months to two years. And there are no pills for that. The discomfort goes to itching, tightness, pressure, ‘twingling’, pulsating, – horrible sensations – and sometimes all of them together, It is something that I have never felt before… I could describe it as hell. Nobody knows what we feel, unless you have been operated in the brain.

Therefore, I have decided to enjoy what I have. My tumour was not cancerous and other than the pain, I have no other effects, except I forget more recent things and events.

Today, I am back to my workouts three times a week and with less energy of course. I am seeing my friends, I have joined a choir and a reading club – and the most important things is to be positive. Oh, and I need to remember to rest when tired… It is very difficult but I am getting there!!!

I also enjoy driving my car which was taken away from me for three months while I recovered.
And of course, I take walks with my adorable husband almost every evening. We cannot let go, we have to continue to try to be happy and fight.

I was told by the zumba teacher last week that i was a source of inspiration for all…that did wonders to me.

Julie xx

Thank you for sharing Julie. Julie lives in Gatineau, Quebec

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