Michelle and Joey's Story

Michelle and Joey's Story












Update: February 23, 2015

I wanted to update you on our story, on January 26, 2015 Joey made his finally journey home to be with the lord!

I miss him more then words can ever express, Joey fought this battle for 18 months, and I was so proud of him and how hard he fought.

I know he did it not only for himself, but he did it for me. That love he showed me, will take with me everywhere I go!

Joey was one-of-a-kind and and I have been so blessed to go through this journey with him and also to become his wife on October 25, 2014.  

 

Update: October 1, 2014

Update on my husband Joey!

As of Today Oct 1, 2014 Joey continues to fight his Glioblastoma, he is still unable to walk because of it, but he is here with us and doing very well so far, he continues to undergo Chemo 5/23 maintenance Chemo as they call it, and so far it seems to be working, Joey had an MRI in July and at that time the tumor has shown signs of shrinking, that was a very joyous day for us.

We did have a few scares when Joey had two bouts of pneumonia and had to have fluid drained of his left lung twice because of it, once again Joey has bounced back and is doing very well,he goes for another MRI on Oct 16, 2014 and we are praying that we will get good news this time as well.Joey continues to show such strength and determination through this journey we’re on,and he makes me so proud each and everyday!

He is doing so well that on Oct 25th 2014 we are making things legal and getting married!! Something we thought would never happened when Joey was first DX! We will continue to fight till the very end!!

Update: March 28, 2014

On March 18th 2014, once again our world was turned upside down, we got the results of Joey’s MRI and it showed that his tumour had grown back to the original size. The doctor told us that it started growing right after surgery in Aug. even after this news we did receive some good news, the swelling in Joey’s brain has reduced and the tumour has stabilized for now. And it’s that news that we are clinging to. Joey has just finished his 3rd round of a 5 day cycle of Temodal and he did amazing with it, he was sick and you would think he wasn’t on Chemo. The doctor told Joey he has beaten the odds so far, because they did not expect him to be here now, and she feels he will continue to do so for awhile yet, because of how strong he is and how well he is doing on Chemo.

I have inquired about the drug Avastin, but was put off about it because of the cost of the drug. How do you put a price tag on your love ones life, so I have been contacting different places to see what help I can get to pay for this drug, I won’t stop fighting to get my husband on this drug. We have another Appt in April and it’s then that I will be adamant about more info on getting Joey on Avastin. I will continue to pray each day that Joey’s tumour will remain stable and that we will have more time together.

Update: January 29, 2014

Joey spent the month of November 2013 between two hospitals, The VG Hospital in Halifax from November 1 to November 12 and then on November 12th, Joey was transferred to the Valley Regional Hospital in Kentville, Nova Scotia. He stayed there until December 2, 2013. In that month, Joey had several ups and downs, good days and bad days. We never knew what each day was going to bring, but our biggest wish was to be home at least by Christmas, something we didn’t know was going to happen or not.

Our prayers were answered and I was able to bring Joey home. We had everything set up for him, the bed, VON, home visits from the Doctors and Nurses ETC…we weren’t sure what it was going to bring but at least we were home. It was once we got home that Joey begin to show improvement each and every day. His appetite picked up to three large meals a day, he begin to become more alert and slept less during the day – to the point where now he is awake all day.

Joey also started to regain some movement in his left leg and hand. Joey’s speech returned to normal and he gained all his weight and then some back.

On January 14, 2014 Joey went for a CT scan to see how well the first round of treatments went concerning the 2% of tumour that was left over from surgery. On January 17, 2014 we went to see Joey’s Medical Oncologist about the results of the CT scan and to find out if Joey was able to undergo his second round of Chemo. We were both so worried about this appointment and what the results of the CT scan would be.

The news we got is the best news we could have ever hoped for at this stage. The remaining bit of tumour that was left over from surgery had stabilized and not grown any. It was still at 7cm, which is still quite large, but it hasn’t grown. Joey still has a lot of swelling around the tumour site and that is what is keeping him from walking right now. Once we get that under control, he should regain his ability pretty quickly.

On January 20, 2014 Joey started his second round of chemo, it was 100 mg stronger then the first round, so Joey and I were concerned how well he would do with it. To our surprise Joey did absolutely wonderful with it, he was never sick or tired and he didn’t lose his appetite either. Joey’s doctor came to do a house call and he was truly amazed at how well Joey was doing and how well he looked. He said it would be office visits now instead of home visits, that is how well he’s doing!

We get out each day and the VON visits were able be dropped down to once a day and only Mon-Fri.

We are so blessed with each and every new improvement, and I’m sure Joey will continue to improve.

~

November 2013

My boyfriend’s journey begin on August 7, 2013. That is the day our world change forever.

Joey was diagnosed with grade 4 glioblastoma multiform (GBM). The tumor was located on his right frontal lobe and was the size of a golf ball.

When you first get that kind of news you just go into total shock and the first question you ask is “why”. Joey is the hardest working man I have ever known and worked right up till that day in August.

On August 13 he underwent surgery to remove the tumor, or the amount of it that they could get safely. Joey’s surgery was four hours long, but to me it seemed like it went on forever. After the surgery, the doctor came out and told us they were able to remove 98% of Joey’s tumor safely.
Brain tumour survivor Joey

Brain tumour survivor Joey

Following the surgery, Joey didn’t have the use of his left hand and limited use of his arm, but we were told that would come back. He could also walk with me standing beside him. As the days went on Joey lost full use of his arm and left hand and depended on me for everything. But we were told that was because of the medication and all the swelling on Joey’s brain.

On Sept 16, 2013 Joey started six weeks of chemotherapy and radiation, which we had to live away from home. We managed to make it work and Joey seemed to be going through treatment with flying colors. We have had other ups and downs while on treatment but each time Joey bounces back. At one point, he had a seizure as well, so we had to alter his medication.

Then, on Monday, October 28 we thought we were home for good and it was a great feeling. Little did we know, Joey would be hospitalized that Friday – November 1st. But once again he bounced back and was doing okay in the hospital.

Then November 5th, brought something I was not prepared for, I woke up that morning and went to wake Joey up for his medication. I couldn’t bring him around. He knew I was there and could squeeze my hand, but nothing else. It was then that the doctors asked me to call the family in. I couldn’t believe it and didn’t want to accept it. The doctors were telling me Joey could pass away at anytime.

Again I found myself asking “why”? Why is this happening to such a wonderful person who loves life so much? To someone that just came into my life and made me the person I am today?

I felt so helpless because all I could do was just stand beside him and hold his hand and talk to him. I just kept telling him to fight and telling him how much I loved him and that we could beat this.

All that night I sat by Joey’s bed and just listened to him breathing and held his hand and continued to tell him how much he was loved and that we had so many plans to look after and he had to keep fighting,and that he had people all over the world praying for him.

6:00 am on Wednesday November 6, everything change. Joey opened his eyes and was able to talk to me and smile. He was asking for his sister Peggy. Joey continued to improve enough that we could be sent to our own hospital, only 10 minutes away from our home – and even more importantly, closer to family and friends.

Each day is truly a blessing that I am thankful for every day, as Joey continues to get strength back and fight this.
 

 

 

 


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