Spring Sprint: Kathy's Story

Spring Sprint: Kathy's Story

Kathy was one of the very first people to register for Spring Sprint 2015. She lives in Ottawa and is participating in honour of her husband Clarke with Team Scobie. This is their story.

My husband (Clarke) was diagnosed with a primary, malignant GBM in May 2012. Since then he’s had surgery, the standard six-week radiation and chemo (5/23 Temodal). He responded well to the chemo so it was continued until January 2014 at which time they found regrowth.

He had a Cyberknife treatment at the end of January, which apparently is still working. His last MRI (his 16th) was stable with what they believe to be an increase in radiation necrosis.

As have gone through this journey I have found things that I wish people knew about this disease. Things like, brain tumours don’t have to be cancerous to be deadly. And that even though the treatment may be successful, the after-affects are real and enduring.

I can’t speak for others, but even though my husband’s treatment has been largely successful, he will never be the man he was. Unlike other illnesses, the damage to the brain from his treatment will never go away.

And so I am participating in Spring Sprint (now Brain Tumour Walk) because we need to raise funds for research, increase awareness about this disease and we want to show our support for Clarke. It’s also good for him to see that he isn’t alone, to see that there are so many other people affected by this disease.

This will be Team Scobie’s third year participating and I hope that we’ll be able to raise even more than we did last year. It’s already looking like we’ll have more friends and family out that day.

That so little is known about brain tumours, their cause and treatment. Although great progress has been made, a lot still needs to be done. He’s had great care, but he’s at the point that even the brightest minds don’t know what to do next.

 

 

Raising funds and awareness is key, we need to get this to the same level of awareness that we have for other cancers and the funds and research will follow.


Thank you Kathy for sharing your story and for your support of
Spring Sprint (now Brain Tumour Walk). The movement to end brain tumours is stronger because of you and your team.


 

 

 

 

 

 

 

 

 

 

 


Share This

Featured Story

Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour growth is stable” and for a moment you think someone is playing the world’s worst prank on you.

Learn more

Spotlight

Stephen's Story: "I have faith that we will meet again"

Stephen and I chatted on what should have been his 32nd Wedding Anniversary. Stephen and Susan were married for 30 years and were best...

Learn more

Tommy's Story: Fellowship recipient

Dr. Tommy Alain, the very first research Fellow funded by Brain Tumour Foundation of Canada through the William Donald Nash Brain...

Learn more

Upcoming Events

  • 23/Jan/2018: Groupe de soutien virtuel: Un groupe de soutien virtuel pour personnes touchées par une tumeur... Learn more >
  • 25/Jan/2018: Virtual Support Group East: Virtual Support Group for Eastern Canada... Learn more >
  • 25/Jan/2018: Sarnia Support Group: Meets at St. Giles Presbyterian Church,770 Lakeshore Road Sarnia, ON... Learn more >
  • 29/Jan/2018: Greater Sudbury Support Group: Meets at The Parkside Centre, 140 Durham Street, Sudbury, Ontario... Learn more >
View All Events >
Thank you to the donors whose contributions make this website and all programs, services and research possible.

Copyright © 2018 Brain Tumour Foundation of Canada. Charitable Registration #BN118816339RR0001
35 Years