Rosy's Story

Rosy's Story

On the January 1st, 2008, our first baby daughter Rosy was born. She was in a good health, lots of energy. She start to stand up by herself in 9 months. We celebrated her first birthday with family and friends.

My husband and I spent one great year with Rosy.

Unfortunately on January 29, 2009 Rosy start to vomit. We were thinking that it was normal. Family would say, "she is teething."

Then came the fever, we went to the doctor, he said it was probably an ear infection.  After 10 days of antibiotics the situation became worse.

On March 7, her doctor told us we should go into the emergency room right away because Rosy had lost too much weight: 2 kgs.

We went at the Montreal Children's Hospital where she was diagnosed with a huge brain tumour, a grade three ependymoma.

She had a first surgery to put in the shunt. Then a a second surgery to completely remove the tumour. We stayed in the hospital for two months.

Then Rosy had 33 days of radiation. Rosy could not pronuounce any words. She cannot move herself, and cannot stand up. After 3 and half years olds Rosy start to walk but have balance control problem.

My husband and I believed that the tumour will never return, unfortunately it came back after five years, in 2013. Rosy had another surgery on March 25, 2014.  Again she had radiation, one strong dose at a time. Then the Oncology Team told us that in the future she cannot have radiation because she has already had all the doses that are safe.

Rosy epyndymona survivor

Again we have positive thoughts that the tumour will not come back.

Rosy is a strong girl she is always positive and she gives us hope and joy.

In January 2015, the tumour recurred again. Rosy is now seven years old. Originally the doctors proposed surgery but then two days before the surgery was cancelled.

The Oncology Team found a new medication to try instead of surgery. She has now started chemotherapy. We will know in two months if the medication is working.  

My daughter Rosy is a brave girl, I believe she will fight and win.

 

 Thank you to Rosy and your family for sharing your story.

 

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