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Diffuse Intrinsic Pontine Glioma: Questions, answers & thoughts

Author: Written on behalf of The Katie McKerracher Trust


This booklet was written on behalf of the Katie McKerracher Trust which was set up in memory of our daughter Katie who was diagnosed with a Diffuse Intrinsic Pontine Glioma (DIPG), a tumour in her brain stem, in February 2008.  

This booklet explains the various stages you are likely to go through, from the shock of diagnosis and embarking on a treatment plan to the importance of keeping a diary, maintaining regular and effective communication, asking questions, and how to cope with the effects of the disease as a family on a day-to-day basis.