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Diffuse Intrinsic Pontine Glioma: Questions, answers & thoughts

Author: Written on behalf of The Katie McKerracher Trust

Summary:

This booklet was written on behalf of the Katie McKerracher Trust which was set up in memory of our daughter Katie who was diagnosed with a Diffuse Intrinsic Pontine Glioma (DIPG), a tumour in her brain stem, in February 2008.  

This booklet explains the various stages you are likely to go through, from the shock of diagnosis and embarking on a treatment plan to the importance of keeping a diary, maintaining regular and effective communication, asking questions, and how to cope with the effects of the disease as a family on a day-to-day basis.