Advocacy Survey 2017

In 2017 we asked: What does Brain Tumour Foundation of Canada need to be advocating for on behalf of the brain tumour community in Canada?

The results are in!

Survey reveals new #1 priority for brain tumour advocacy 

"Access to new drugs and treatments is the ultimate hope," wrote a respondent. 

"Survival depends on having access to latest drugs and treatments. You can have the research and know what helps, but if you can't get it then it's no use," another wrote. 

"Without counting, we are only guessing about how prevalent this is. It could be worse than we think, we could be missing the mark on research and funding for that. Without this data, we don't have a great place to advocate from."

"Counting each brain tumour in Canada can help with the research."

By the Numbers

• 132 surveys were returned to Brain Tumour Foundation of Canada with respondents from nine provinces and one territory
• 53 per cent of participants were either a brain tumour patient or survivor, with 29 per cent being a friend or family member
• 46 participants ranked the financial burden of a brain tumour diagnosis within their top five priorities 
• Almost 30 per cent (with the most agreement among all stakeholders) chose access to new drugs and treatment as their No. 1 priority
• 18 per cent see awareness of brain tumour signs and symptoms as the most important issue
• 16 per cent of participants selected research as their second highest priority
• 15 per cent of people supported data collection as a priority No. 5 five, with few people thinking it should be a low priority 

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