Stories of the movement to end brain tumours

This collection of personal stories feature many inspiring people whose lives have been affected by a brain tumour. You will find stories about how patients and families find strength and hope, stories of perseverance and giving back to make an impact

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared and for everything you do to help the movement to end brain tumours.


Candace's Story: "A real rollercoaster"

For the past six years, Candace Graham’s life has been full of ups and downs – a “real rollercoaster,” she says. But still, this 32-year-old doesn’t let her circumstances set the tone for her life. Candace is a brain cancer survivor and this is her incredible story.

Cassie and Lianna: A tribute to their Mom

Cassie and Lianna: A tribute to their Mom

When Sunday, June 12 arrives this year, sisters Cassie and Lianna, along with members of “Team Mary,” will lace up their sneakers and join hundreds of supporters at Andrew Haydon Park for the 22nd annual Ottawa Brain Tumour Walk. While the day will be full of mixed emotions, the sisters say seeing other families in similar circumstances is comforting and inspirational. Cassie adds, “As hard as it is to do the Brain Tumour Walk, it’s also healing for us. I find it is hard to talk about our mom’s


Chase's Story of Hope

Imagine being able to play football in a weekend game, and a few days later finding out you have a brain tumour – one that would take away your balance and ability to walk. Now imagine you’re 5 years old. That is the exact situation that the Delisle family found themselves in in late 2013.

Chris Wynder

Chris Wynder's Volunteer Story

Just because you leave your white lab coat in your closet doesn’t mean you have left that life behind. Chris Wynder wanted to find a way to be part of the brain tumour community when he left the laboratory for a new adventure in IT. So he started volunteering with Brain Tumour Foundation of Canada so he could find that connection. Chris was a brain tumour scientist; he left that chapter behind and moved to London with his family.


Candace's Story: "‘Normal’ is just a setting on the dryer!"

As a parent, it's natural to be worried about the "what ifs" that could harm your child - but what happens when those concerns become your reality? Candace's story is all about the challenges caregivers face on the pediatric brain tumour journey, and how despite it all, their optimism and strength continues on.

Chuck and Rebecca

Chuck and Rebecca's Story "Our new normal"

For young married couple Rebecca and Chuck Mott, 2014 was an exciting year. Chuck had recently started a new job, a cottage and puppy helped keep the Mott's busy, and a growing family seemed right around the corner. That was until Rebecca heard a loud sound one morning in October.

Covering the Cost of Chemotherapy: A Brain Tumour Patient Speaks Out

Covering the Cost of Chemotherapy: A Brain Tumour Patient Speaks Out

When Guelph, Ontario resident Lynsey Frangakis finished university and started her career, she never would have predicted how different her life would soon be. After years of headaches that were explained away as a pinched nerve and several month of partial seizures, she was diagnosed with a brain tumour in December 2011. To fight the large oligodendroglioma Lynsey was put on the chemotherapy Temozolomide.


Cindy's Story: A 1700-kilometre walk to honour those with brain tumours

When registered massage therapist and fitness instructor Cindy Rivard laces up her runners this summer, it will be for a hike the likes of which she’s never before embarked. Starting in early August 2013, this Orleans, ON resident will walk El Camino de Santiago, or St. James’ Way – a 1700km trek across France and Spain. The pilgrimage is both a personal goal for Cindy and holds a special place in her heart...

Caregiver and Survivor Takes Advocacy to the National Level

Caregiver and Survivor Takes Advocacy to the National Level

The cliché is; “when life gives you lemons, you make lemonade,” and activist Femma Norton brings this saying to life by taking the many lemons she has been given and squeezing the most out of them. Her sheer optimism and determination have led to important efforts for the brain tumour community in Canada.

Continuing the Important Work

Continuing the Important Work

As the founders of Parkway Gardens, a garden centre in London’s Hyde Park, Peter and Carina Jacobsen are no strangers to community support and a vision for the future. In 1972, the family was very active with three children, Carina’s role as a library cataloguer at The University of Western Ontario and the launch of Parkway Gardens. “We built a house, a business, and a life,” remembers Peter.

Charlie & Kathy Prongua

Charlie & Kathy Prongua

Volunteer Profile - Charlie and Kathy often express gratitude for the opportunity to meet so many wonderful people through Brain Tumour Foundation of Canada, but it is their outstanding commitment to the organization that we are thankful for.

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Grey Matters - Blogger Tuesdays

Have you seen our blog lately? Read about people who are making a difference in the brain tumour community from our staff and volunteers to our donors, funded researchers, and medical experts. You will find advice, news, information, and interesting stories about people affected by a brain tumour. Who doesn't love a good story? You won't want to miss the inside scoop Grey Matters has in store for you!

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Roy and the Gamma Knife – A Happy Tale

I had headaches, almost daily, for 10 years or more. It was a rare day if I did not have a headache. I used to joke that I should own...

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Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour...

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Upcoming Events

  • 20/Mar/2018: North Bay Support Group: Meets at St. Luke's Catholic Elementary School, 225 Milani Road, North Bay.... Learn more >
  • 20/Mar/2018: Groupe de soutien virtuel: Un groupe de soutien virtuel pour personnes touchées par une tumeur... Learn more >
  • 20/Mar/2018: Windsor Support Group: Meets at the United Way, Unit A1, 300 Giles Blvd. East... Learn more >
  • 20/Mar/2018: Halifax Support Group: Meets at The Lodge That Gives, 5826 South Street, Halifax, NS... Learn more >
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