Stories of the movement to end brain tumours

This collection of personal stories feature many inspiring people whose lives have been affected by a brain tumour. You will find stories about how patients and families find strength and hope, stories of perseverance and giving back to make an impact

We are honoured to be able to share these stories and say 'Thank You' to everyone who has shared and for everything you do to help the movement to end brain tumours.

Lisa

Lisa's Story of Hope

Meet Lisa Clarke: a wife, a mother, a community volunteer, and a brain tumour survivor with an uncanny ability to find the bright side in any situation. On a morning like any other, Lisa opened her mouth to say goodbye as her husband left for work, and found that she was at a complete loss for words. “I couldn’t get any sound to come out… It was scary. When I finally did, it was completely garbled.”

Lilli

Lilli's Story: "Not so benign"

When Team Jack and Lil laced up their sneakers for the 2016 Toronto Brain Tumour Walk, it was the first time that team captain Lilli took part in the annual fundraiser. But for Lilli, who named the team after a “term of an endearment” she has for her own brain tumour and the popular Jack and Jill nursery rhyme, it was also a bittersweet occasion.

Lauren and Duncan

Lauren and Duncan's Volunteer Impact

Living in Northern Canada changes the meaning of friends and family. Friends become like family because of proximity, which is exactly what happened with the Sellars and Trimble families. When Trevor Sellars was diagnosed with a brain tumour in 2011, this bond between the two families became even stronger... This is how Lauren Trimble-Nixon & Duncan Nixon first heard about Brain Tumour Foundation of Canada.

Honouring Three Extraordinary Women

Honouring Three Extraordinary Women

In May 2015, three remarkable women, who have worked tirelessly, and given countless volunteer hours in support of the brain tumour community, were honoured by the Pencer Brain Tumour Centre: Jennifer Gouchie, Susan Marshall, Femma Norton.

Lesley-Ann

Lesley-Ann's Story: Still teaching in some ways

A high school teacher for 19 years, Lesley-Ann Senior is, “still teaching in some ways” after her six craniotomies. Lesley-Ann was born with a craniopharyngioma, a non-malignant tumour that occurs in childhood but in Lesley-Ann’s case was not detected until 1994 when Lesley-Ann was an adult.

Lorraine

Lorraine's Story of Strength

“His whole attitude this whole time has been: ‘It is what it is. I gotta deal with it,’” says Lorraine Pinchbeck, mother of 48-year-old Mike – a former mechanic who was born and raised in Vancouver and is a survivor of a glioblastoma multiforme brain tumour. In mid-2012, Mike suffered from a few easily overlooked symptoms like headaches and loss of balance. When doctors suggested it could be caused by vertigo, nobody thought much of it.

Leaving a Legacy for Others

Leaving a Legacy for Others

It was August of 1985 when Shelley Fitak first began to learn about brain tumours. It was then that her first husband, Bob Thierman, was diagnosed with a brain tumour. At the time, little was known about brain tumours. In addition, there was very little support or information available across Canada ...

Lin-Pei

Lin-Pei's Story

In early 2011, Lin-Pei was eagerly awaiting the arrival of her first child and had no idea how her life would soon change. She has written her story about being diagnosed with a malignant brain tumour and how she has found hope and support including a phenomenal fundraising campaign for Spring Sprint.

Little Kol's Big Story

The middle child of Kirk and Kristen Friggstad, Kolbjorn (Kol) is eight-years old and is the only boy in the family of five children. Busy with piano, voice lessons, and home schooling, this Outlook, Saskatchewan family was unprepared for sudden change to their life when Kol was diagnosed with a brain tumour. Now, one year later, the entire Friggstad family is gearing up for the Saskatoon Spring Sprint to raise funds and awareness for Brain Tumour Foundation of Canada.

Lori and Stephen Wilson: 2010 Volunteers of Distinction

Lori and Stephen Wilson: 2010 Volunteers of Distinction

Lori and Stephen Wilson have been active volunteers for Brain Tumour Foundation of Canada in Calgary for many years. In 2001 Lori was diagnosed with two non-malignant brain tumours and since that time, they have learned more about the disease, and have become determined patient advocates – volunteering their time to support other patients, and help raise overall brain tumour awareness.

Lori & Stephen Wilson

Lori & Stephen Wilson

Volunteer Profile - Brain Tumour Foundation of Canada would like to proudly thank Lori and Stephen for sharing their story and for their continued support to assist families affected with a brain tumour.

 

Lucilia Pontes-Botelho & Rui Botelho

Lucilia Pontes-Botelho & Rui Botelho

Volunteer Profile - Neither Rui nor Lucilia volunteer with the intention of being rewarded, but the fulfillment they gain through their work makes it all worthwhile: "No matter how significant your contributions may be, you are always making a difference. As a volunteer, you must never underestimate your ability to make a success out of anything you do."

Living Life, Sharing Hope

Living Life, Sharing Hope

Today, Jennifer Baker feels great. But not a day goes by that she doesn't think about the brain tumour that changed her life forever.

 

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Featured Story

Grey Matters - Blogger Tuesdays

Have you seen our blog lately? Read about people who are making a difference in the brain tumour community from our staff and volunteers to our donors, funded researchers, and medical experts. You will find advice, news, information, and interesting stories about people affected by a brain tumour. Who doesn't love a good story? You won't want to miss the inside scoop Grey Matters has in store for you!

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Spotlight

Roy and the Gamma Knife – A Happy Tale

I had headaches, almost daily, for 10 years or more. It was a rare day if I did not have a headache. I used to joke that I should own...

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Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour...

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Upcoming Events

  • 20/Apr/2018: Caregiver Wellness Day: Royal Oaks Golf Club, Moncton, NB... Learn more >
  • 25/Apr/2018: Toronto Support Group: Meets at Wellspring Westerkirk House at Sunnybrook, Toronto, ON... Learn more >
  • 25/Apr/2018: Ottawa Support Group: Meets at the Maplesoft Centre at 1500 Alta Vista Drive, Ottawa, ON.... Learn more >
  • 26/Apr/2018: Brain Fair: BMO Centre, 295 Rectory St, London, ON... Learn more >
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