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X-WR-CALNAME:Brain Tumour Foundation of Canada
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DTSTART;TZID=America/Toronto:20260929T120000
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SUMMARY:Webinar: Talking to children about brain tumours and cancer
DESCRIPTION:Talking to children about brain tumours and cancer \nPresented by: Ms. Tory Hagerman\, Family Support and Outreach Manager\, Gilda’s Toronto  \nDate: Wednesday\, September 29\, 2026\nTime: 12 p.m. to 1 p.m. EST \nRegister Now \n  \n  \nDescription:   \nDrawing on expertise in community-based psychosocial cancer care\, this webinar is designed for parents\, guardians and caregivers impacted by a brain tumour diagnosis\, as well as healthcare\, education\, and psychosocial professionals seeking practical guidance on communicating with children and adolescents about serious illness. Grounded in evidence-based practices in child development\, grief theory\, family-centred care\, and psychosocial oncology\, the presentation explores compassionate\, developmentally appropriate approaches to supporting children and youth throughout illness and life-changing events. \n\n\n\nThe presentation will include:\n\n\nHow children at different developmental stages understand illness\, brain tumours\, and cancer\nAge-appropriate language and strategies for disclosing a serious illness to children and adolescents\nBuilding trust through honest\, developmentally appropriate communication as a family\nSupporting children through conversations about prognosis & anticipatory grief\nResponding to children’s questions and emotions with honesty\, empathy\, and confidence\nProfessional\, community\, school-based\, and peer supports available to children and families\nRecommended books\, resources\, and educational tools to support ongoing family conversation\n\nParticipants will leave with practical strategies\, evidence-informed resources\, and greater confidence in supporting children and adolescents through open\, honest\, and compassionate conversations about brain tumours and cancer.\n  \nAbout the speaker:  \nTory Hagerman (she/her) is a Certified Child Life Specialist with more than 22 years of experience supporting children\, youth\, and families across clinical\, community\, education and home-based settings. Her work is grounded in family-centred care\, health equity\, and a commitment to ensuring that children and families feel seen\, heard\, and supported through life-changing experiences.\n\nTory brings extensive experience in psychosocial oncology\, child and family programming\, clinical leadership\, and community engagement\, with particular expertise in supporting children and families navigating cancer\, grief\, illness\, and other significant life transitions. She is passionate about creating accessible\, inclusive spaces where children can use play\, education\, connection\, and self-expression to understand and cope with difficult experiences.\n\nThroughout her career\, Tory has developed and led family-focused programs\, facilitated support groups\, built community partnerships\, and provided leadership and mentorship to professionals working with children and families. She is deeply committed to strengthening systems of support around families and to ensuring that every child has access to a safe\, trusted adult who can help them navigate life’s most challenging moments. \nTory’s approach is collaborative\, compassionate\, and strengths-based\, with a focus on empowering children and families while advancing meaningful\, equitable psychosocial support.
URL:https://www.braintumour.ca/event/webinar-talking-to-children-about-brain-tumours-and-cancer/
CATEGORIES:Webinar Series
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DTSTART;TZID=America/Toronto:20261029T120000
DTEND;TZID=America/Toronto:20261029T130000
DTSTAMP:20261016T160806
CREATED:20261005T150647Z
LAST-MODIFIED:20261005T172913Z
UID:10003393-1793275200-1793278800@www.braintumour.ca
SUMMARY:Webinar: The AYA Gap: Rethinking brain tumour care across the lifespan divide
DESCRIPTION:The AYA Gap: Rethinking brain tumour care across the lifespan divide\nDate: October 29 2026\nTime: 12pm to 1pm EST\nPresented by: Dr. Mary Jane Lim-Fat\, Neuro-oncologist\, Sunnybrook Health Sciences Centre \nRegister now \n\nDescription:\nAdolescents and young adults (AYA) with brain tumours fall between paediatric and adult neuro-oncology\, and their care often reflects that gap. Tumours in this age group have their own epidemiological\, histological and molecular profile\, including paediatric-type entities that present in adults and adult-type gliomas that arise early. Patients also face problems specific to their stage of life: disrupted education and careers\, threats to fertility\, psychosocial and neurocognitive effects that unfold across decades of survivorship\, limited access to clinical trials\, and fragmented transitions between paediatric and adult services. Our talk reviews the biological and molecular features that set AYA brain tumours apart and outlines the systemic and developmental barriers to optimal care. It proposes a practical\, multidisciplinary framework for age-appropriate management\, from diagnosis and molecular characterization through treatment\, trial enrolment\, and long-term survivorship. \nLearning objectives: \n1. Describe the unique epidemiological\, biological and molecular features of brain tumours in AYA \n2. Identify systemic and developmental challenges specific to AYA neuro-oncology care \n3. Apply a framework for multidisciplinary age-appropriate management of AYA brain tumour patients \nAbout the speaker: \nDr. Mary Jane Lim-Fat\, MD\, MSc\, FRCPC\, is a neuro-oncologist at Sunnybrook Health Sciences Centre\, and an Assistant Professor at the University of Toronto. She is the CNS Site Lead at the Odette Cancer Centre and an Associate Scientist at Sunnybrook Research Institute where she leads several academic registries and clinical trials in neuro-oncology. Her academic work focuses on precision therapeutics in brain tumors\, specifically under the following themes: 1) adolescent and young adult (AYA) neuro-oncological care\, 2) molecular biomarkers and targeted therapeutics\, and 3) investigation and translation of non-invasive biomarkers of response and resistance in CNS oncology. Dr. Lim-Fat is the co-lead of the Canadian AYA Neuro-Oncology Network (CANON) and has served on the Board of Directors of the Society for Neuro-Oncology from 2022-2025.
URL:https://www.braintumour.ca/event/webinar-the-aya-gap-rethinking-brain-tumour-care-across-the-lifespan-divide/
CATEGORIES:Webinar Series
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LOCATION:https://us06web.zoom.us/webinar/register/WN_yeSRmwLYQIm19B43ye0zTg
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