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SupportManagingthejourneywithabraintumourcanbeemotionallychallenging.Whetherthroughthecross-CanadaadultsupportgroupsBrainWAVEthepediatricsupportprogramorbyphoningthetoll-reeinormationandsupportlineconnectingwithotherswhohavesimilarexperiencesorwithaproessionalwhocanprovideone-on-onesupporthelpsthousandsoCanadiansaectedbyabraintumourfndcomorteachyear.HavingbeenrecentlydiagnosedwithabraintumourIwasfeelingunsureofwhattodonextandhowtoadvocateformyself.IcalledBrainTumourFoundationofCanadaandthesupportIreceivedwasreallyusefulandreassuring.IwasalsotoldabouttheOttawasupportgroupandhavenowbecomearegularmemberandthegroupsconvenorItsbeenextremelyhelpfultoconnectwithotherpatientsandfamilies.Learningabouthowtheynavigatedthehealthcaresystempreparedmeformyownjourneyandhashelpedmeunderstandhowtobettercommunicatewithmymedicalteamaboutmyneeds.LianneBrodeurneeOKaneGatineauQCIn2012hundredsofindividualsfoundcomfortthroughSupportServices.One-hundredandthreefamiliesconnectedthroughBrainWAVEa72increaseinparticipationfrom2011.JacquelineHuffandhertwinsQuinlanandConnerChilliwackBCFiveyearsagoQuinlanwasstillrecoveringfromhisinitialbraintumourprocedureswhenwegotinvolvedwithBrainTumourFoundationofCanadatolaunchtheLowerMainlandBCBrainWAVEgroup.Ourfamilywaslookingforawaytomeetandconnectwithothersfacingthejourneywithabraintumour.JacquelineIreallywantedthechancetotalktoothersiblingsofbraintumourpatientsandsurvivorsandshareourexperiences.Wecouldbewithpeoplewedmetduringhospitalvisitsbutinahappierenvironment.Wecouldhavequalitytimewithourfriendsinplacesfocusedonhavingfunratherthanbeingsick.Conner16BrainWAVEhasgivenmethechancetofeellikearegularkidtohavefunandbuildfriendshipsthathavelastedforyears.Quinlan1612waveBRAINBrainWAVEsummer2012