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How Can You Help?

Are you wondering how you can help #EndBrainTumours but don’t know where to start? Here are some ways you can have your voice heard and make a difference in the brain tumour community.

We can’t do this work without you!

  • CanCertainty Coalition

    The CanCertainty Coalition is the united voice of more than 30 Canadian patient groups, cancer health charities, and caregiver organizations from across the country, joining together with oncologists and cancer care professionals to significantly improve the affordability and accessibility of cancer treatment. We are committed to ensuring all Canadians have CanCertainty – certainty that if cancer strikes them or their loved ones they will have fair and equal access to cancer treatment – no matter their age, cancer type, treatment type or where they live.

    In partnership with CanCertainty, Rethink Breast Cancer has recently launched a petition to advocate for Ontario cancer patients to have equal access to take-home cancer treatment drugs.

    view website sign petition

  • March of Dimes Canada / Disability Without Poverty

    March of Dimes Canada is a leading national charity committed to championing equity, empowering ability, and creating real change that will help the more than six million people living with disabilities across the country unlock the richness of their lives. The #DisabilityWithoutPoverty movement was created to ensure that the Canada Disability Benefit becomes a reality.

    view website Write to Your MP

  • The Canadian Organization for Rare Disorders (CORD)

    The Canadian Organization for Rare Disorders (CORD) has and will continue to work with governments across Canada to build a comprehensive rare disease strategy that supports patients, including centres of expertise, access to medicine and investment in research. A petition to the Government of Canada has been launched to advocate for a National Strategy for Drugs for Rare Diseases to better help Canadians affected by rare disorders.

    Sign the Petition

  • Canadian Agency for Drugs and Technologies in Health – CADTH

    CADTH is seeking to engage people with personal or professional experience with treatment of glioblastoma in Canada. Specifically, CADTH is interested to engaging with health care professionals (e.g., oncology specialists, oncology nurses, social workers, pharmacists, administrators, leadership) and people with experience (e.g., patients, family members, caregivers) with the treatment and management of glioblastoma. In this instance, CADTH is seeking people with the ability to:

    • contribute to the diversity of perspectives through awareness of others’ experiences and views within the patient or professional community (for example, experience with a professional or patient association, or as a volunteer, staff member, or board member)
    • act with integrity, independent of specific interests
    • work constructively as a member of a diverse team

    There are a limited number of engagement opportunities available to support this work, including as an expert consultant, peer reviewer, or committee member. The time commitment will vary depending on the role, with engagement activities expected to occur between August 2023 and January 2024. An honorarium will be provided to those selected for the project.

    If selected for this project, we will communicate with you primarily by email. Meetings are held in English through Zoom or Teams, link or by toll-free telephone.

    Share your Experience