Who Is Eligible?

• Aged 18-39
• Have been diagnosed with cancer in the last 10 years
• Identify as 2S/LGBTQ+ or any other non-heterosexual identity

 
For more information please contact Whitney Qualls – whitney_qualls@sfu.ca

The study is looking for Canadian parents that have a child younger than 18 that is currently receiving or previously received treatment for cancer. This study involves completing an online survey, a chance to win a $100 amazon gift card.

Who Is Eligible?

Parents of children (17 years old or younger) with cancer, Parents of survivors of childhood cancer who are 17 years old or younger, Bereaved parents who have lost their child (17 years old or younger) to cancer.

For more information please contact – alberts.lab@concordia.ca

In order to develop policy and resources that target young caregivers, we are conducting interviews to understand factors of resilience and vulnerability that either facilitate or hinder development and wellbeing.

Who Is Eligible?

A young caregiver (16-25 yrs old) of person(s) with a neurodegenerative disease (Dementia, Parkinsons, MS, ALS, or a Neurological Disorder (Stroke, Brain Tumour)

For more information please contact – ycs@torontomu.ca

The purpose of this study is to investigate if we can improve the treatment of patients with meningioma by accomplishing 3 goals:

1) to develop and validate a disease specific questionnaire to comprehensively evaluate quality of life (QoL) in meningioma patients;

2) understand patient perspectives on meningioma and research approaches;

3) to create diagnostic ‘profiles’ to improve management of meningiomas (compiling symptoms and disease characteristics that will facilitate in the identification of meningioma). QoL is an individual’s satisfaction with their general health, well-being, and life conditions.

f you have been diagnosed with a meningioma tumour within the past 10 years, had surgical removal of the tumour, or neuro-oncological intervention (e.g. radiation) for the meningioma, and are 18 years of age or older, please consider completing the online survey:

complete survey

For more information please contact – braintumours@smh.ca

You are being invited to participate in the research study mentioned above. Prior to your participation, we must first ensure that you are eligible to complete this study. To do this, we will be asking you to answer some pre-screening questions that will determine whether you are eligible to participate and complete our online survey.

For more information contact – Associate Professor, Department of Psychology, Concordia University, nicole.alberts@concordia.ca, (514) 848-2424 ext. 2185

We are seeking cancer survivors who are not currently in treatment to share their experiences for a research study aimed at understanding survivorship care. Interviews will be conducted online via Zoom and will take about 30 minutes. Your insights and experiences are incredibly valuable. If you are interested in participating, please reach out to me via email at meghna.katyal@duke.edu. Your contribution will greatly enhance our understanding and improvement of survivorship care.

Any cancer survivor not currently undergoing treatment is eligible to participate.

For more information – meghna.katyal@duke.edu

We hope to enroll 2000 people to get a complete picture of what it means to have cancer as a young adult right now. The information you provide will be used to increase awareness and develop programs to address the issues that Young Adults with cancer feel are most important. People living in Canada who are over the age of 18 and were diagnosed with any type of cancer before the age of 40. You will complete an online survey once a year for up to five years. Each survey will take approximately 30-45 minutes to complete.

All you have to do is complete the following link:

complete study

Once we confirm your eligibility, you will receive an email with a unique link to complete the survey.

For more information – research@youngadultcancer.ca

The purpose of this study is to develop a checklist to measure how parents/caregivers value genetic testing for cancer. Once developed, this checklist will help provide evidence to guide funding decisions and access to genetic tests for children. Parents and caregivers of a child with cancer or a cancer predisposition syndrome who: Received genetic test results for their child in the past year, received the genetic test results from a doctor or genetic counsellor in Canada, are comfortable communicating in English. Participation in the study involves completing the checklist while reflecting on your child’s genetic test results, and short questionnaires about yourself and their child. The study takes approximately 20 minutes and is completed online. You will receive a $15 coffee card upon completion of the surveys.

For more information on how to participate, please email – pguide.study@sickkids.ca

Some pediatric cancer survivors may experience cognitive difficulties. This study aims to compare different cognitive screening measures to help identity children/youth who need further assessment and resources. Child/Youth: One assessment (at SickKids) of cognitive skills and completing a questionnaire (duration: 2.5 hours) Parent: Five questionnaires to complete on child/youth’s behavior, functioning, and quality of life, and one sociodemographic questionnaire (duration: one hour) Teacher (optional): Two questionnaires to complete on child/youth’s learning and functioning (duration: 30 minutes). Pediatric cancer survivors aged eight to 16 years who are at least one year after the end of treatment, and English speaking. A parent will be invited to participate in the study, and a teacher may optionally be invited to participate.

For more information, please email Bethany Lerman – bethany.lerman@sickkids.ca

Virtue Research is conducting a unique online survey that will help us understand the treatment and management of certain Metastatic Cancers. If you qualify and complete the online survey, you will be compensated $200 for your time (60 mins total of task). You will be paid by cheque 2-3 weeks after the study has been fully completed. This study will require participation for 10-15min surveys for up to 2 weeks (60 mins total). It will also require access to a computer and an Internet connection with a web browser. People diagnosed with certain Metastatic Cancers within the last three years are invited to participate in a paid online survey that will help us understand the treatment and management of these cancers: Non-Mutated, Non-small Cell Lung Cancer, Gastric / Gastroesophageal Cancer, Esophageal Cancer, Renal Cell Carcinoma, Met Metastatic Cancer Survey Interest Form.

For more information or questions- Shreya Prakash, 425-436-8688, shreya@endbraincancer.org

We are conducting interviews with persons who have glioblastoma (GBM) as well as caregivers of persons with glioblastoma (or who have since died) to explore their needs and experiences with prognosis disclosure and complex treatment decisions including palliative care. The overarching goal of this project is to improve physician-patient and physician-care partner communications post-GBM-diagnosis by ensuring understanding of prognosis, palliative care, and the patient’s personal preferences. Our team aims to create a decision support tool that ensures prognostic understanding, provides information about care options for treatment and palliation, and allows the GBM patients’ values to be documented. Participants must meet the following inclusion criteria: Be a patient who was diagnosed with GBM by a healthcare provider in Ontario (OR), be a care partner to a GBM patient (alive or deceased), and be able to complete a 60-minute interview in French or English. Individuals who are not able to provide consent or deemed to have low decisional capacity will be excluded.

For more information, please email sruller@ohri.ca

Among hallmark features of glioblastomas (GBMs) are regions of reduced oxygen supply to tissues below physiologic levels – termed hypoxia. Hypoxia within tumor environment (the environment within a tumour) constitutes a major concern for GBMs because it triggers cancer cell invasion, inhibition of antitumor immune responses, and radio-resistance. The hypoxia tracer (pimonidazole; PIMO) is used as a marker that can be administered to patients prior to surgery and detected in tumour specimens, upon their surgical removal, in order to examine hypoxic regions in the tumour microenvironment. We use PIMO to identify the hypoxic regions in GBM and use state-of-the-art molecular techniques to understand the biological and genetic features of cells that reside in the hypoxic regions. This approach will help identify specific features of hypoxic cells that can then be targeted with new drugs. We encourage adult GBM patients at Toronto Western Hospital to inquire further, and consent if suitable, to participate in our PIMO study prior to their surgery, so that when the tumor is removed it can be donated to our lab for research on hypoxic regions in the GBM environment. Ultimately, by performing deep molecular analysis of the hypoxic regions we are able to design new strategies to make tumor cells more sensitive to therapy and, thereby, improve the survival of patients with GBM. Eligible patients are those aged 18 and above with primary or recurrent glioblastoma diagnoses undergoing surgical resection at the Toronto Western Hospital.

Any questions, contact Dr. Sheila Mansouri at: sheila.mansouri@uhnresearch.ca

Caring Forward is an online study seeking to learn more about the experiences of unpaid caregivers of brain injury survivors living in Canada. The information we receive will be used to create resources and programs that support caregivers and improve well-being. Participants will be asked to fill out a 30-minute online survey once every six months for up to two years. We are seeking individuals who: Are an unpaid caregiver for someone with a brain injury, this person may be a child, a friend, a parent, a spouse, a sibling, or a relative, live in Canada, have access to a tablet, a smartphone, or a computer and are fluent in English.

For more information, please contact us toll-free at: 1-877-341-8309 (ext. 8 or 9) or email caringforward@iwk.nshealth.ca

The study, conducted by the Injury Prevention Research Office and St. Michael’s Hospital in Toronto, Canada aims to measure the effect of visual symptoms on the quality of life in patients with pituitary tumors. Visual symptoms are one of the most common effects of large pituitary tumors. This study is aimed to develop a tool to better measure the effect of these visual symptoms on a pituitary tumor patient’s ability to function in daily life. Anyone who is currently/or has ever been diagnosed with a pituitary tumor. If you are interested in participating in the study by completing the survey, click here. This survey should take about 45 minutes to complete.

If you have any other questions, please feel free to contact us at: injuryprevention@smh.ca

The purpose of this study is to discover why some people develop LGG while other people do not. We also hope to learn more about the effect of this diagnosis and the associated treatments on daily life including the ability to work, drive, sleep, exercise, or take care of oneself and/or family. Any person over the age of 20 years with an initial diagnosis of LGG. Postmortem tissue samples and pathology reports may also be eligible for inclusion in the study. Please email for more information.

For more information: email the study at: glioma@yale.edu