Get Involved
There are so many ways you can help make a difference in the lives of patients and families today.
Research
Our vision is: To find the cause of and a cure for brain tumours while improving the quality of life for those affected. Research is the key to achieving our vision.
Brain Tumour Registry of Canada
Making sure every brain tumour counts.
What is the Brain Tumour Registry of Canada?
The Brain Tumour Registry of Canada collects data from every tumour diagnosed, to better understand prevalence and survival rates for brain tumours, and get a better picture on who is affected, and any possible causes. It was officially launched in May 2019.
What information is available through the registry?
The Incidence and Mortality Report is the most thorough report of its kind in Canada. Following the very first Incidence Report published in May 2019 (which presented data collected between 2010-2015 in four provinces: BC, AB, MB, ON), the 2021 report uses information from all provinces and territories (excluding Quebec). This pan-Canadian view greatly increases our understanding of brain and central nervous system tumours in Canada.
The first all-Canadian Survival Report breaks down 1, 2, and 5-year survival rates in BC, AB, MB, and ON, with the addition of non-malignant tumour data making this a first of its kind as well.
Why is it important?
For a long time, the only brain tumour demographic research available to Canadian medical professionals came from the United States. Our 2021 Incidence and Mortality Report now gives us a comprehensive look at brain tumours across Canada using all-Canadian information.
What does ‘making sure every brain tumour counts’ mean?
It means that every tumour has research value. The more information we have on all types of brain tumours, the better equipped our medical professionals are to provide the best possible treatment to each individual patient. A unique feature of the Brain Tumour Registry is that it features data on both malignant and non-malignant tumours.
Not only that, but having such detailed information on brain tumours helps secure funding for research, health care delivery and drug approvals by federal and provincial agencies.
How can I help?
Donations can be made toward the Brain Tumour Registry, to make sure we can keep it as up-to-date as possible, and ensure that medical professionals have the best information possible.
Brain Tumour Registry of Canada: Past, Present & Future
As part of the 2019 Brain Tumour Webinar Series, Dr. Faith Davis gave an update on the Brain Tumour Registry of Canada. This presentation includes:
- Why a Brain Tumour Registry is needed
- Overview of how brain tumour data is unique within cancer registries
- Details of population-level data available on brain tumours in Canada
Watch a recording of this webinar.
