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Studies and Surveys

Your experience matters. Help researchers across Canada shape the direction of brain tumour treatment by taking part in studies and surveys.

This page provides links to active research projects you may wish to explore. By sharing your experience and information, you can help researchers and organizations across Canada shape the direction of brain tumour research. Your participation is vital to the progress of these studies and surveys.

PLEASE NOTE: These studies and surveys are conducted by external organizations and are not administered by Brain Tumour Foundation of Canada. For more information, please contact the individual or institution listed for each study.

  • Managing your Fear of Cancer Recurrence: A Research Study for Canadian Parents

    We are looking for Canadian parents/caregivers of a childhood cancer survivor to participate in this 7-week, online group intervention co-designed with parents to help them manage their fear of cancer recurrence

    Who is Eligible: Parents of a childhood cancer survivor who worry their child’s cancer may come back, the child is at least 1 month from the completion of treatment, less than 18 years of age and has not experienced a cancer recurrence.

    For more information: choly@uottawa.ca

  • Rehabilitation and Exercise for Advanced Cancer Health (REACH) study

    Researchers at the University of Alberta are seeking adults with advanced or metastatic cancer to participate in the Rehabilitation and Exercise for Advanced Cancer Health (REACH) study. The goal of the REACH Study is to learn about your experiences of living with cancer and to better understand your needs related to rehabilitation and exercise support.

    Who can participate?

    • Adults (18+ years) living in Canada
    • Diagnosed with any type of advanced, recurrent, relapsed, or metastatic (stage 4) cancer
    • Able to complete a 15-20 minute survey in English or French

    Please access the survey at the following link: https://redcap.link/wudq5f7d.

    For any questions or concerns, email: frmace@ualberta.ca. This study has been approved by the Health Research Ethics Board of Alberta (Ethics Protocol ID: HREBA CC-24-012).

  • Sexual health of cancer survivors

    Join this study on the sexual health of cancer survivors in Canada.  This is a 30-minute survey covering demographics, cancer history and sexual health.

    Eligibility: Individuals diagnosed with cancer within the last 5 years who are 19 years or older and living in Canada for the past 5 years.

    For more information and to participate, click here.

  • ALBERTA - Sociodemographic and psychosocial patient and physician factors in oncology treatment decision-making

    Researchers at the University of Calgary are conducting a study to explore how patient and physician factors—such as background, experiences, and personal beliefs—influence shared treatment decision-making. The study seeks to better understand patients’ experiences and challenges when making treatment decisions with their oncologists, as well as their perspectives on what an ideal treatment discussion would look like.

    Participants in the study will be asked to complete two questionnaires that include questions about socio-demographic background, psychological factors, and details of their cancer diagnosis. They will also take part in one focus group (approximately 90 minutes) with other cancer patients and survivors.
    As a token of appreciation, participants will receive a $25 gift card for sharing their insights and experiences.

    Who is eligible to participate?

    • Adults (18+) diagnosed with cancer within the past two years (2023 – present)
    • Living in Alberta
    • Referred to a medical oncologist for a chemotherapy assessment
    • Comfortable using Zoom videoconferencing software

    For more information, please email Madison Leia at Madison.leia1@ucalgary.ca.

  • A qualitative exploration of supportive care for cancer-related cognitive impairment: Insights from healthcare providers and individuals living with and beyond cancer

    This study will explore knowledge, insights, and needs related to cancer-related cognitive impairment (also known as “brain fog”) in order to inform more tailored psychosocial supports. Participation involves a short online survey (10 minutes) and a virtual interview (30–60 minutes).

    Who is eligible to participate?

    Ontario-based individuals living with and beyond a malignant cancer diagnosis (any age, type, or stage) who have Internet access and can communicate in English.

    For more information, please email Sitara Sharma (PhD Student) at sitara.sharma@uottawa.ca.

  • Clinical Providers’ and Cancer Patients’ Perspectives on the Ethical Implications of Utilizing Life Expectancy Algorithms

    We are UBC researchers studying how cancer patients feel about the use of artificial intelligence (AI) in their care, especially when it comes to predicting life expectancy. Through one-on-one interviews, either in-person or virtually, we hope to learn about patients’ thoughts, expectations, comfort levels, and any concerns they may have about using AI in medical decisions. By gathering the experiences of people receiving cancer care, we aim to better understand how patients view these new technologies. Our findings will help improve patient education, support clear communication, and guide the use of AI tools to benefit patient care and outcomes.

    Who is eligible to participate?

    To participate in this study, you much be a patient with a cancer diagnosis (of any stage and any type), be 18 years or older, have the capacity to make decisions, and reside in British Columbia.

    For more information please contact Anita Ho, PhD, MPH (Principal Investigator) at anita.ho@ubc.ca or Nikolay Alabi, BS (Co-Investigator) at nalabi60@student.ubc.ca

  • Examining the use of social media social support groups by caregivers of children with cancer

    Researchers from the University of New Brunswick and the IWK Health are currently recruiting parents and caregivers across Canada to participate in a study, regardless of whether they use social media support groups or not. The purpose of the study is to better understand the connection between mental health and the use of social media support groups for families affected by childhood cancer.

    Participate

  • Young Adult Cancer Canada (YACC) RECOVER Study

    We hope to enroll 2000 people to get a complete picture of what it means to have cancer as a young adult right now. The information you provide will be used to increase awareness and develop programs to address the issues that Young Adults with cancer feel are most important. People living in Canada who are over the age of 18 and were diagnosed with any type of cancer before the age of 40. You will complete an online survey once a year for up to five years. Each survey will take approximately 30-45 minutes to complete.

    All you have to do is complete the following link:

    complete study

    Once we confirm your eligibility, you will receive an email with a unique link to complete the survey.

    For more information – research@youngadultcancer.ca

  • Study on visual symptoms of patients with pituitary tumours seeks survey participants

    The study, conducted by the Injury Prevention Research Office and St. Michael’s Hospital in Toronto, Canada aims to measure the effect of visual symptoms on the quality of life in patients with pituitary tumors. Visual symptoms are one of the most common effects of large pituitary tumors. This study is aimed to develop a tool to better measure the effect of these visual symptoms on a pituitary tumor patient’s ability to function in daily life. Anyone who is currently/or has ever been diagnosed with a pituitary tumor. If you are interested in participating in the study by completing the survey, click here. This survey should take about 45 minutes to complete.

    If you have any other questions, please feel free to contact us at: injuryprevention@smh.ca

  • International Low Grade Glioma Registry

    The purpose of this study is to discover why some people develop LGG while other people do not. We also hope to learn more about the effect of this diagnosis and the associated treatments on daily life including the ability to work, drive, sleep, exercise, or take care of oneself and/or family. Any person over the age of 20 years with an initial diagnosis of LGG. Postmortem tissue samples and pathology reports may also be eligible for inclusion in the study. Please email for more information.

    For more information: email the study at: glioma@yale.edu

Brain Tumour Foundation of Canada
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