It's OK to have Different Dreams

It's OK to have Different Dreams

In 2003, I heard the words that no parent should ever have to hear, “your four-year old son has a brain tumour.” That’s how my husband Rick and I learned that little Cole had a brain stem glioma. The doctor then told us not to look it up, we wouldn’t be happy with what we would find. The frightening news continued with the pediatric brain surgeon telling us that she couldn’t operate. We were devastated.

We gained some hope with the guidance of the radiation oncology team. Cole began his series of 30 radiation treatments over six weeks, just prior to Easter. We were all happily surprised when Cole’s tumour was shown to have shrunk by 75%. There really was hope.

During all of this turmoil, and our ongoing journey of recovery and coping with treatment side effects, Brain Tumour Foundation of Canada has been there for us. There are programs for all ages and the information offered is invaluable. Today, we need your continued help to ensure that other families facing a brain tumour can get the support and information that they need.

When we found out about Brain Tumour Foundation of Canada it was truly a beacon in the night. Just knowing that the information we needed was from a reliable source that wasn’t promoting a specific treatment or option helped greatly. The Pediatric Brain Tumour Resource Handbook has been so very helpful to us. It has all of the treatments, side effects and information on dealing with siblings. I kept it on my bedside table and referred to it often.

The BrainWAVE Program supports the entire family. We love the fact that his sisters are included in all the activities. It’s something for our whole family to attend together without the pressure that Cole’s challenges and “difference” creates . It has been so very helpful knowing that there was a group out there that understands what Cole was going through and what I was going through as his care giver.

Your help can be directed to these important programs and services – it can also be directed to brain tumour research, which gives hope to families like ours. If brain tumours could only be diagnosed sooner that would make a huge difference. Through research funding new and better treatments could be just around the corner.

Cole is 12 now and in grade 7. For mom and dads, there is a certain amount of grieving that you do at the beginning and that’s OK.

(Cole and his sisters at a BrainWAVE event)

You know that it will never go away, but that’s OK.

When you see other kids reaching milestones that your child never will, grieving is OK.

And it’s OK to have different dreams.

You really do make a difference with your support. Please continue to help us find those earlier diagnoses, better treatments and one day that elusive cure. You can send your gift today.

Story posted: November 2011

Share This

Featured Story

Courtney’s Story of Stability

Stability. It’s a strange concept when you have what it known to be a progressive, life long illness. You hear the words, “Your tumour growth is stable” and for a moment you think someone is playing the world’s worst prank on you.

Learn more


Stephen's Story: "I have faith that we will meet again"

Stephen and I chatted on what should have been his 32nd Wedding Anniversary. Stephen and Susan were married for 30 years and were best...

Learn more

Tommy's Story: Fellowship recipient

Dr. Tommy Alain, the very first research Fellow funded by Brain Tumour Foundation of Canada through the William Donald Nash Brain...

Learn more

Upcoming Events

  • 16/Jan/2018: North Bay Support Group: Meets at St. Luke's Catholic Elementary School, 225 Milani Road, North Bay.... Learn more >
  • 16/Jan/2018: New Glasgow Support Group: Meets at East Haven Manor, 695 East River Road in New Glasgow, NS ... Learn more >
  • 17/Jan/2018: Windsor Support Group: Meets at the United Way, Unit A1, 300 Giles Blvd. East... Learn more >
  • 17/Jan/2018: Calgary Support Group: Meets at Wellspring Calgary, 1404 Home Road NW, Calgary, Alberta, T3B 1G7... Learn more >
View All Events >
Thank you to the donors whose contributions make this website and all programs, services and research possible.

Copyright © 2018 Brain Tumour Foundation of Canada. Charitable Registration #BN118816339RR0001
35 Years