Private Facebook Support Groups

There are 4 Private Facebook Support Groups, providing support 24/7 to the brain tumour community.
There are now 4 Private Facebook Support Groups!
  1. A group for anyone affected by a brain tumour – English
  2. A group for anyone affected by a brain tumour – French
  3. A group for anyone affected by a pediatric brain tumour – English
  4. A group for anyone affected by a pediatric brain tumour – French

In these online groups, you will gain access to an active group of Canadian brain tumour patients, survivors, parents and other caregivers who will be asking questions, answering your questions and sharing stories of hope and support.

In order to participate, you will need to become a member. Admins will use their discretion to approve members of the group and have the right to remove posts and/or members at any time. Other people on Facebook cannot see that you are a member of this group, and cannot see what has been posted.

By requesting access to a Private Facebook Support Group, you are agreeing to the following:
  • The Private Facebook Support Group is offered to facilitate support and communication between individuals affected by brain tumours. It is not intended to replace the advice or instruction of a professional healthcare practitioner or to substitute for medical care. We urge you to seek specific medical advice on individual matters of concern. If you are in crisis and need emergency assistance, please call a crisis line or your local emergency services.
  • Posts deemed to be promoting a service or product or slandering individuals or organizations will be removed. Please review the Online Etiquette (below) for additional guidelines.
  • While private, new members can be added at any time and therefore we advise you to consider this group as a public forum. Members are strongly advised not to share personal identifiers such as email address, telephone, street address, etc. that can be used to identify you and link you to the content you provide.
  • Members are advised that information obtained from a physician should be considered more up-to-date and accurate than the information in the group and that this group does not and cannot purport to address facts and circumstances particular to any patient. This is something that can only be done by the patient’s physician.
  • Brain Tumour Foundation of Canada does not endorse or recommend any particular form or forms of therapy, regimen, or behaviour that may be discussed.
  • Brain Tumour Foundation of Canada is funded entirely through generous donations from individuals, corporations, and employee groups as well as through memorial gifts, planned giving and special events. Therefore, we respectfully ask that you do not fundraise for any cause other than Brain Tumour Foundation of Canada. This includes no links to crowdfunding and fundraising sites such as GoFundMe accounts please.
If you agree to the above you may:

Join The English Private Group

Join the French groupe de soutien fermé Facebook

Join the English pediatric group

Join the French pediatric group

Online Etiquette

Brain Tumour Foundation of Canada encourages you to be responsible and to respect the brain tumour community as well as other participants. Your conduct should be guided by common sense, basic etiquette, and the following rules.

We prohibit any of the following:

  • using explicit, vulgar or obscene language
  • exploiting a minor (any person under the age of 18)
  • discussing or inciting illegal activity, such as how to build a bomb, counterfeit money, etc.
  • posting or referencing sexually explicit images or other offensive content
  • using racially or ethnically offensive language
  • disrupting the flow of chat in chat rooms with vulgar language, abusiveness, hitting the return key repeatedly or inputting large images so the screen goes by too fast to read, etc.
  • soliciting for the exchange of sexually explicit images, and/or material harmful to minors; including but not limited to any photograph, film, video, picture, or computer-generated image or picture (actual or simulated)
  • harassing, threatening or embarrassing a chat participant, or doing anything else that is unwanted
  • offering products or services for sale
  • infringing on anyone else’s intellectual property rights, including but not limited to any copyright, trademark, rights of publicity, or other proprietary rights
  • impersonating or representing Brain Tumour Foundation of Canada, Brain Tumour Foundation of Canada staff, or community leaders
  • harvesting email addresses
  • posting or requesting personal or other information from a minor (any person under the age of 18), including, without limitation, any of the following: full name, home address, telephone number, picture, or the name of their school
  • Brain Tumour Foundation of Canada reserves the right to remove inflammatory posts including messages, photos, links, videos or any other material deemed to be disruptive to the brain tumour community. Brain Tumour Foundation of Canada also reserves the right to block or ban users from posting on web properties and social media who are soliciting products, creating posts considered to be ‘spam’. Violation of any of the above-listed rules may result in post removal and/or banning of the user.
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