Closed Facebook Support Groups

Our Facebook Groups offer 24/7 access to the brain tumour community in a supportive environment. While the groups are always accessible, please note that they are only monitored by Brain Tumour Foundation of Canada (BTFC) staff during regular business hours (Monday – Friday 8:30 am – 4:30 pm ET).

We currently host six closed groups:

A group for anyone affected by a brain tumour – English
A group for anyone affected by a brain tumour – French
A group for anyone affected by a pediatric brain tumour – English
A group for anyone affected by a pediatric brain tumour – French
A group focused on caregivers – English
A group focused on young adults – English

In these online groups, you’ll connect with a vibrant community of brain tumour patients, survivors, caregivers, and parents. Group members actively ask questions, provide support, and share stories of hope and encouragement.

To participate, you’ll need to request membership in one of the groups. BTFC group administrators will review membership requests and have the discretion to approve or remove members or posts at any time. While your posts and membership details are not visible to those outside the group, please note that social media platforms cannot guarantee privacy or confidentiality. We encourage you to be mindful of the information you share within the group.

By joining a closed Facebook group, you agree to the following:

These groups are designed to foster communication and connection among those affected by brain tumours. They are not intended to replace professional healthcare advice or services. We strongly encourage you to seek medical advice from qualified practitioners for any specific concern.
Posts promoting products or services, or those that defame individuals or organizations, will be removed. Please review our Online Etiquette guidelines below for further information.
While the group is closed, new members may join at any time. We recommend treating the group as a public forum and avoiding the sharing of personal information, such as email addresses or phone numbers, that could identify you.
Please note that the information shared in this group may not be as up-to-date or accurate as advice from a healthcare professional. Always consult your healthcare team for personalized medical guidance.
Brain Tumour Foundation of Canada does not endorse or recommend specific treatments, therapies, or regimens discussed within the group.
We kindly ask that fundraising efforts be limited to supporting Brain Tumour Foundation of Canada. This includes refraining from sharing links to external crowdfunding platforms like GoFundMe.

If you agree to these terms, you may request to join the following groups:

Join the English Closed Group

Join the French Closed Group

Join the English Closed Pediatric Group

Join the French Closed Pediatric Group

Join The English Closed Caregiver Group

Join the English Closed Young Adult Group

Online Etiquette

We encourage all participants to engage respectfully and responsibly, keeping in mind the importance of constructive communication. Please follow these rules:

Be kind and respectful: Treat all group members with respect, including leadership, staff, volunteers, and fellow members. Personal attacks, harassment, or negative comments directed at individuals, or the organization are not allowed.
Welcoming feedback: We encourage feedback as part of our continuous improvement efforts. To maintain the group’s positive, hopeful, and encouraging atmosphere, we kindly ask that any constructive feedback, questions, or concerns related to BTFC policies, procedures, or the administration of the group, be shared directly with the organization through direct messages or email info@braintumour.ca. This helps ensure the group remains a supportive and respectful space for all members.

We prohibit the following actions:

Using vulgar or explicit language
Exploiting or referencing minors (any person under the age of 18)
Discussing or promoting illegal activities
Sharing sexually explicit or offensive content
Using discriminatory language
Disrupting the group with spam, excessive messaging, or abusive content
Harassing or threatening others
Selling or promoting products or services
Infringing on others’ intellectual property
Impersonating Brain Tumour Foundation of Canada staff or leadership
Harvesting email addresses or personal information

Brain Tumour Foundation of Canada reserves the right to remove any posts, messages, or content deemed to be inflammatory, disruptive to the community, or that contravenes the guidelines of the group or BTFC’s online etiquette. We also reserve the right to block or ban users who violate these rules or post spam. By following these guidelines, you help maintain a respectful and constructive space for all members of our community.

Stay Informed!

Care & Support

Care & Support