Meet Alicia Grace Chenier.

Our 2025 Sudbury and Community Walks ambassador.

How have brain tumours impacted you?

I was diagnosed with a craniopharyngioma tumour at eight months old, leading to permanent low vision and chronic illnesses.

How did you become involved with Brain Tumour Foundation of Canada?

In 2019, I took part in my first Brain Tumour Walk in Sudbury, also becoming involved in the monthly support group.

When the pandemic hit, I was part of a bunch of brain tumour survivors and family members who connected online. I would talk with parents of children with brain tumours who were diagnosed at a young age and wonder, ‘What is my child going to be able to accomplish?’

Well, here I am, so ask me anything! Growing up, I never had anyone I could look up to in that sense. That’s why I started sharing my life on social media and bringing awareness to the fact that you can live well with a brain tumour.

I received a Volunteer of Distinction Award in 2021 for my involvement in the SUPERKIDS program. I also received a Youth Education Award in 2023, generously funded by Kumar Classic, which has helped me achieve my dreams of pursuing my bachelor’s degree in disability studies.

How and when have you participated in past Brain Tumour Walks? How will you be participating this year?

I did one in-person Walk in 2019 and then the pandemic hit, so the next year was virtual. I’ve been involved ever since and helping with it however I can. I spoke at the City Hall for the proclamation. This year, I’m excited to be the Sudbury Walk ambassador, as well as the national Community Walk ambassador.

Why would you encourage others to participate in the Brain Tumour Walk?

I would encourage people to get involved with the community because whether they have been personally impacted by brain tumours or know people who have or just want to be an ally to the community, we’re all walking for the same reason at the end of the day. We’re all stronger together than we are apart.