Help Wanted

Experience matters. Help researchers across Canada shape the direction of brain tumour treatment by taking part in studies.

On this page you will find links to current research projects underway that you may be interested in participating in.

NOTE: These are third-party studies, not conducted Brain Tumour Foundation of Canada.

Please click here for a list of clinical trials

How Do We Improve Care for Cancer Survivors?

What is the study about?

We are looking to interview cancer survivors and family/friends caregivers of survivors to talk about their views on what is most important after completing cancer treatment.

This study has been approved by the Nova Scotia Health Authority Research Ethics Board (REB file #1024142).

Who can participate?

Adults over the age of 18 years who have completed treatment for cancer in Canada.

Family/friend caregivers (18 years of age or older) of an individual who has completed treatment for cancer in Canada.

For more information:

Please email Sarah Dickieson at dickieson@nshealth.ca, or call 902-473-7290.

Active by Nature

What is the study about?

We are looking for adult cancer survivors 19 years and older to participate in an online survey to understand physical activity behavior, environment and psychosocial outcomes

Who can participate?

Adult cancer survivors 19 years and older

Where can you take the survey?

 Use one of the following methods to participate:

1. Follow http://www.surveymonkey.com/r/activebynature
2. Contact Dr. Iris Lesser at: Iris.Lesser@ufv.ca
3. OR use this QR code:

Study on visual symptoms of patients with pituitary tumours seeks survey participants

What is the study about?

The study, conducted by the Injury Prevention Research Office and St. Michael’s Hospital in Toronto, Canada aims to measure the effect of visual symptoms on the quality of life in patients with pituitary tumors. Visual symptoms are one of the most common effects of large pituitary tumors. This study is aimed to develop a tool to better measure the effect of these visual symptoms on a pituitary tumor patient’s ability to function in daily life.

Who can participate?

Anyone who is currently/or has ever been diagnosed with a pituitary tumor.

Where can you take the survey?

If you are interested in participating in the study by completing the survey, click here. This survey should take about 45 minutes to complete.

If you have any other questions, please feel free to contact us at injuryprevention@smh.ca

The Journey for Survivors of Childhood Brain Tumours: From Post-Treatment into Adolescence and Adulthood

What is the study about?

Researchers at the University of Manitoba and CancerCare Manitoba would like to learn about what it is like to live with and manage the late-effects associated with survival from childhood brain tumours. The study is led by Dr. Roberta L. Woodgate.

Who can participate?

  • Survivors of childhood brain tumours, 8 years older and up
  • Diagnosed with a brain tumour before the age of 19 years
  • Has not been receiving treatment for the past 12 months.

We are looking to interview between 20-30 survivors of childhood brain tumours and their families (up to 2 family members).

For more information: please contact ingauge@umanitoba.ca

International Low Grade Glioma Registry

What is the goal of the study?
The purpose of this study is to discover why some people develop LGG while other people do not. We also hope to learn more about the effect of this diagnosis and the associated treatments on daily life including the ability to work, drive, sleep, exercise, or take care of oneself and/or family.

Who can enter the study?
Any person over the age of 20 years with an initial diagnosis of LGG. Postmortem tissue samples and pathology reports may also be eligible for inclusion in the study. Please email for more information.

For more information:
Please use one of the methods below for more information about the study.

email the study at glioma@yale.edu

Learn more about Dr. Elizabeth B. Claus

If you are interested in learning more about this Registry, please see a recording of a webinar held in July 2019 or read this article from The International Brain Tumour Alliance.