Help Wanted

Experience matters. Help researchers across Canada shape the direction of brain tumour treatment by taking part in studies.

On this page you will find links to current research projects underway that you may be interested in participating in.

NOTE: These are third-party studies, not conducted Brain Tumour Foundation of Canada.

Caring Virtually: A Virtual Care Oncology Patient Study – Request for Assistance in Patient Recruitment

The purpose of this study is to understand cancer patient experiences using virtual care during the COVID-19 pandemic, and to develop recommendations that will help to ensure adoption and adaptation of equitable, equal, consistent, and comprehensive virtual care best practices across Canada.

Who is Eligible:

To achieve the objectives of this project, we will conduct one-on-one interviews with cancer patients who have used virtual care during the COVID-19 pandemic as part of their cancer care.

These interviews are offered in both English and French, for which an honourarium will be provided.

Should you have any questions, please do not hesitate to contact us at:
CaringVirtually@protonmail.com

A physical activity social support webinar for those caring for young adult cancer survivors

Young adults often need support from significant/caring others to achieve their physical activity goals after cancer treatment, but these individuals don’t always know how to provide this support. We are conducting a study to evaluate a 30-min educational webinar on social support for physical activity. We are recruiting young adult cancer survivors and their significant/caring others.

Who is Eligible:

Young adults who:

  • Are between 18-39 years of age
  • Have completed primary treatment for cancer
  • Are comfortable reading and speaking English
  • Have access to the Internet and audio-visual device (e.g., computer with a webcam)

Significant others who care for a young adult cancer survivor and:

  • Are over 18 years of age
  • Are comfortable reading and speaking English
  • Have access to the Internet and an audio-visual device (e.g., computer with a webcam)

For more information please contact Jenson Price, University of Ottawa:
613-562-5800, ext. 7300
Or email: jenson.price@uottawa.ca

Cognitive Function & Physical Activity in Young Persons Treated for Cancer

Cancer survivors often report reduced quality of life due to difficulties with cognitive function and psychological distress during and/or after cancer treatments. The goal of this virtual study is to better understand how cancer-related cognitive impairments affect adolescent and young adult cancer survivors, as well as the potential use of physical activity to improve brain health and quality of life for in this understudied group.

Who is Eligible:

  • Were diagnosed with cancer between 15 to 39 years and are currently between 16 to 39 years
  • Have completed primary treatment for non-metastatic cancer
  • Have access to the Internet and audio-visual devices
  • Are able to read, speak, and provide informed consent in English

For more information please contact Sitara Sharma Master’s Student, University of Ottawa:
613-562-5800, ext. 7300
Or email: sitara.sharma@uottawa.ca

Managing your Family Caregiver Worries: A Research Study

Do you worry about your loved one’s cancer coming back? Do you worry weeks before your loved one’s follow-up appointments? Do your worries about your loved one’s cancer coming back cause you distress or affect your daily life?

If so, a brief online group study is being offered to address these worries.

Who can participate?
Women, living in Ontario, who currently provide unpaid support to a loved one:

  • who is 18 years of age or older
  • who has recently been diagnosed with cancer and has finished their treatment
  • who has not experienced a cancer recurrence
  • and worry about cancer for themselves or their loved ones
  • and are interested in exploring their fear of cancer recurrence
  • and are willing to participate in seven weekly small online group meetings
  • and are willing to answer questionnaire packages at various points in time

For more information on how to participate, please contact Jani Lamarche, research coordinator, at:
613-562-5800, ext. 4903
Or email: jlama023@uottawa.ca

Caring Forward – Caregiver survey

Caring Forward is an online study seeking to learn more about the experiences of unpaid caregivers of brain injury survivors living in Canada. The information we receive will be used to create resources and programs that support caregivers and improve well-being. Participants will be asked to fill out a 30-minute online survey once every six months for up to two years.

Who can participate?
We are seeking individuals who:

  • Are an unpaid caregiver for someone with a brain injury
  • This person may be a child, a friend, a parent, a spouse, a sibling, or a relative
  • Live in Canada
  • Have access to a tablet, a smartphone, or a computer
  • Are fluent in English

To sign-up for the study, visit: https://mystudies.ca/studies/caregiver

After you sign-up, you will receive a brief phone call from a member of our research team to confirm your interest in participating and answer any questions you may have. Once this call is complete, you will receive a link to your online survey.

For more information, questions or concerns, please contact us toll-free at:
1-877-341-8309 (ext. 8 or 9)
Or email: caringforward@iwk.nshealth.ca

Study Seeks Patients’ Perspectives on Neurosurgical Resident Doctor Training Program

 

Researchers at St. Michael’s Hospital, in Toronto, invite you to participate in a survey on what patients value in their neurosurgeon and on patient involvement in evaluating neurosurgical resident doctors. Incorporating your input into neurosurgical residency training is essential to develop well-rounded neurosurgeons who more effectively meet patient needs and expectations, and we are grateful for your consideration!

Who can participate?

If you are either a neurosurgical patient or a family member, acting as an informal caregiver of a neurosurgical patient, who has had a minimum of one clinical encounter with a staff neurosurgeon, and are 18 years of age or older, you are eligible to participate!

If you are interested in participating in the study, you can complete the survey at the following link: https://www.surveymonkey.com/r/PatientPerspective2021

This survey should take 15-30 minutes to complete.

If you have any questions, please feel free to email us at: Luke.Bannon@unityhealth.to

STUDY – Physical activity and quality of life post-diagnosis


This study is investigating the link between physical activity participation and measures of quality of life in primary brain tumour patients after diagnosis.  We are collecting survey data from primary brain tumour patients over 6 months (6 surveys total) to better describe how physical activity may be associated with measures of quality of life during the disease course.

Who can participate?
We are looking for individuals over the age of 18 who have been recently diagnosed with a primary brain tumour (within one month of diagnosis or resective surgery).  Participants should also be able to carry out activities of daily living independently at the time of recruitment (corresponding with a Karnofsky Performance Status of >70).

Where can you take the survey?
The study will consist of a brief telephone interview to collect basic demographic data.  Subsequently, participants will be emailed a link to an online survey.  Participants will asked to complete subsequent surveys every month for six months thereafter.  

Contact information
Please contact Meaghan Wunder (medical student investigator) at  mwunder2023@meds.uwo.ca if you wish to participate or have any further questions.

STUDY – Self-Employed Cancer Survivors

Cancer and Work (www.cancerandwork.ca) are seeking self-employed cancer survivors to share their experiences in remaining or returning to work following cancer and cancer treatments. Your contribution will help us understand how self-employed cancer survivors manage with remaining or with returning to work after a cancer diagnosis.
The sharing of your experience will
help us understand how best to guide others who are self-employed. Your participation will include a 30 to a 45-minute interview which can take place over the telephone, or video- conferencing at a time that is most suited to your schedule.
With permission, the interview will be recorded, and your identity will be kept confidential. Interviews will be take place between
September 2020 and December 2021.

Please contact Dr. Christine Maheu at christine.maheu@mcgill.ca to participate in a short interview for one of the research studies.

Study on visual symptoms of patients with pituitary tumours seeks survey participants

What is the study about?

The study, conducted by the Injury Prevention Research Office and St. Michael’s Hospital in Toronto, Canada aims to measure the effect of visual symptoms on the quality of life in patients with pituitary tumors. Visual symptoms are one of the most common effects of large pituitary tumors. This study is aimed to develop a tool to better measure the effect of these visual symptoms on a pituitary tumor patient’s ability to function in daily life.

Who can participate?

Anyone who is currently/or has ever been diagnosed with a pituitary tumor.

Where can you take the survey?

If you are interested in participating in the study by completing the survey, click here. This survey should take about 45 minutes to complete.

If you have any other questions, please feel free to contact us at injuryprevention@smh.ca

The Journey for Survivors of Childhood Brain Tumours: From Post-Treatment into Adolescence and Adulthood

What is the study about?

Researchers at the University of Manitoba and CancerCare Manitoba would like to learn about what it is like to live with and manage the late-effects associated with survival from childhood brain tumours. The study is led by Dr. Roberta L. Woodgate.

Who can participate?

  • Survivors of childhood brain tumours, 8 years older and up
  • Diagnosed with a brain tumour before the age of 19 years
  • Has not been receiving treatment for the past 12 months.

We are looking to interview between 20-30 survivors of childhood brain tumours and their families (up to 2 family members).

For more information: please contact ingauge@umanitoba.ca

International Low Grade Glioma Registry

What is the goal of the study?
The purpose of this study is to discover why some people develop LGG while other people do not. We also hope to learn more about the effect of this diagnosis and the associated treatments on daily life including the ability to work, drive, sleep, exercise, or take care of oneself and/or family.

Who can enter the study?
Any person over the age of 20 years with an initial diagnosis of LGG. Postmortem tissue samples and pathology reports may also be eligible for inclusion in the study. Please email for more information.

For more information:
Please use one of the methods below for more information about the study.

email the study at glioma@yale.edu

Learn more about Dr. Elizabeth B. Claus

If you are interested in learning more about this Registry, please see a recording of a webinar held in July 2019 or read this article from The International Brain Tumour Alliance.